ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hello everyone.

I'm new here on the DN, but unfortunately not new to the world of dizziness.
I've struggled with BPPV since Dec. 2005. I was at first diagnosed with
vestibular neuronitis, which gradually dissapeared leaving "only" the BPPV
behind and vertigo caused by migraine.

Im not a native English speaker, so I was wondering if you, Ann, could explain
to me what "hydrops" and "MAV" mean? Im of course extremely curious to find
out if there is anything I can do to make the crystals go away and stay away!!
I have tried EVERYTHING it seems, but maybe, hopefully, this is something
new... :-)

Best to you all,
Lise

> Date: Sat, 10 Apr 2010 09:28:04 -0700
> From:
> To:
> Subject: Re: DN suggestions
>
> Maria,
>
> If your diagnosis is correct (hydrops and MAV), it is important to:
>
> 1) get the hydrops under control, often with a low sodium diet (1000 mg/day)
and sometimes adding a diuretic,and
> 2) eliminate MAV (avoid triggers and often meds).
>
> These can cause BPPV, so eliminating these will allow the Epley/Canalith
Repositioning Maneuver to keep the crystals out of the semicircular canal. It
is imperative that you see a PT who is specialized in vestibular disorders to
get the correct treatment. And, of course, work with a neurotologist.
>
> My best,
> Ann Katz, PT
> Austin
>
>
>
>
> ________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hello everyone.

I'm new here on the DN, but unfortunately not new to the world of dizziness.
I've struggled with BPPV since Dec. 2005. I was at first diagnosed with
vestibular neuronitis, which gradually dissapeared leaving "only" the BPPV
behind and vertigo caused by migraine.

Im not a native English speaker, so I was wondering if you, Ann, could explain
to me what "hydrops" and "MAV" mean? Im of course extremely curious to find
out if there is anything I can do to make the crystals go away and stay away!!
I have tried EVERYTHING it seems, but maybe, hopefully, this is something
new... :-)

Best to you all,
Lise

> Date: Sat, 10 Apr 2010 09:28:04 -0700
> From:
> To:
> Subject: Re: DN suggestions
>
> Maria,
>
> If your diagnosis is correct (hydrops and MAV), it is important to:
>
> 1) get the hydrops under control, often with a low sodium diet (1000 mg/day)
and sometimes adding a diuretic,and
> 2) eliminate MAV (avoid triggers and often meds).
>
> These can cause BPPV, so eliminating these will allow the Epley/Canalith
Repositioning Maneuver to keep the crystals out of the semicircular canal. It
is imperative that you see a PT who is specialized in vestibular disorders to
get the correct treatment. And, of course, work with a neurotologist.
>
> My best,
> Ann Katz, PT
> Austin
>
>
>
>
> ________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. does anyone take any supplements that help with vertigo, migranes, ringing in
ears ear popping etc
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hello everyone.

I'm new here on the DN, but unfortunately not new to the world of dizziness.
I've struggled with BPPV since Dec. 2005. I was at first diagnosed with
vestibular neuronitis, which gradually dissapeared leaving "only" the BPPV
behind and vertigo caused by migraine.

Im not a native English speaker, so I was wondering if you, Ann, could explain
to me what "hydrops" and "MAV" mean? Im of course extremely curious to find
out if there is anything I can do to make the crystals go away and stay away!!
I have tried EVERYTHING it seems, but maybe, hopefully, this is something
new... :-)

Best to you all,
Lise

> Date: Sat, 10 Apr 2010 09:28:04 -0700
> From:
> To:
> Subject: Re: DN suggestions
>
> Maria,
>
> If your diagnosis is correct (hydrops and MAV), it is important to:
>
> 1) get the hydrops under control, often with a low sodium diet (1000 mg/day)
and sometimes adding a diuretic,and
> 2) eliminate MAV (avoid triggers and often meds).
>
> These can cause BPPV, so eliminating these will allow the Epley/Canalith
Repositioning Maneuver to keep the crystals out of the semicircular canal. It
is imperative that you see a PT who is specialized in vestibular disorders to
get the correct treatment. And, of course, work with a neurotologist.
>
> My best,
> Ann Katz, PT
> Austin
>
>
>
>
> ________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. does anyone take any supplements that help with vertigo, migranes, ringing in
ears ear popping etc
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. The psychiatrist at my office suggested Melatonin for ringing in the
ears. Just started taking it myself, but no noticable difference yet.

Lydia




> does anyone take any supplements that help with vertigo, migranes,
> ringing in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hello everyone.

I'm new here on the DN, but unfortunately not new to the world of dizziness.
I've struggled with BPPV since Dec. 2005. I was at first diagnosed with
vestibular neuronitis, which gradually dissapeared leaving "only" the BPPV
behind and vertigo caused by migraine.

Im not a native English speaker, so I was wondering if you, Ann, could explain
to me what "hydrops" and "MAV" mean? Im of course extremely curious to find
out if there is anything I can do to make the crystals go away and stay away!!
I have tried EVERYTHING it seems, but maybe, hopefully, this is something
new... :-)

Best to you all,
Lise

> Date: Sat, 10 Apr 2010 09:28:04 -0700
> From:
> To:
> Subject: Re: DN suggestions
>
> Maria,
>
> If your diagnosis is correct (hydrops and MAV), it is important to:
>
> 1) get the hydrops under control, often with a low sodium diet (1000 mg/day)
and sometimes adding a diuretic,and
> 2) eliminate MAV (avoid triggers and often meds).
>
> These can cause BPPV, so eliminating these will allow the Epley/Canalith
Repositioning Maneuver to keep the crystals out of the semicircular canal. It
is imperative that you see a PT who is specialized in vestibular disorders to
get the correct treatment. And, of course, work with a neurotologist.
>
> My best,
> Ann Katz, PT
> Austin
>
>
>
>
> ________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. does anyone take any supplements that help with vertigo, migranes, ringing in
ears ear popping etc
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. The psychiatrist at my office suggested Melatonin for ringing in the
ears. Just started taking it myself, but no noticable difference yet.

Lydia




> does anyone take any supplements that help with vertigo, migranes,
> ringing in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Lipoflavanoids for ringing in the ears or there is a generic (special order
from like Walmart)
, ask phramacist, can't remember the generic name ,same thing , much cheaper.
stay away from anything over the counter for headaches, colds, like tylenol,
ibuprofen, excedrin, etc. . .
they ALL give me ringing in the ears . . otherwise I don't have any. .. .
.just white noise.
Debs

--- On Thu, 4/15/10, Lydia Brennan <> wrote:

From: Lydia Brennan <>
Subject: Re: DN suggestions
To: "" <>
Date: Thursday, April 15, 2010, 4:53 PM

The psychiatrist at my office suggested Melatonin for ringing in the ears.
Just started taking it myself, but no noticable difference yet.

Lydia



On Apr 14, 2010, at 11:10 PM, "Maria Samson" <> wrote:

> does anyone take any supplements that help with vertigo, migranes, ringing
in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hello everyone.

I'm new here on the DN, but unfortunately not new to the world of dizziness.
I've struggled with BPPV since Dec. 2005. I was at first diagnosed with
vestibular neuronitis, which gradually dissapeared leaving "only" the BPPV
behind and vertigo caused by migraine.

Im not a native English speaker, so I was wondering if you, Ann, could explain
to me what "hydrops" and "MAV" mean? Im of course extremely curious to find
out if there is anything I can do to make the crystals go away and stay away!!
I have tried EVERYTHING it seems, but maybe, hopefully, this is something
new... :-)

Best to you all,
Lise

> Date: Sat, 10 Apr 2010 09:28:04 -0700
> From:
> To:
> Subject: Re: DN suggestions
>
> Maria,
>
> If your diagnosis is correct (hydrops and MAV), it is important to:
>
> 1) get the hydrops under control, often with a low sodium diet (1000 mg/day)
and sometimes adding a diuretic,and
> 2) eliminate MAV (avoid triggers and often meds).
>
> These can cause BPPV, so eliminating these will allow the Epley/Canalith
Repositioning Maneuver to keep the crystals out of the semicircular canal. It
is imperative that you see a PT who is specialized in vestibular disorders to
get the correct treatment. And, of course, work with a neurotologist.
>
> My best,
> Ann Katz, PT
> Austin
>
>
>
>
> ________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. does anyone take any supplements that help with vertigo, migranes, ringing in
ears ear popping etc
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. The psychiatrist at my office suggested Melatonin for ringing in the
ears. Just started taking it myself, but no noticable difference yet.

Lydia




> does anyone take any supplements that help with vertigo, migranes,
> ringing in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Lipoflavanoids for ringing in the ears or there is a generic (special order
from like Walmart)
, ask phramacist, can't remember the generic name ,same thing , much cheaper.
stay away from anything over the counter for headaches, colds, like tylenol,
ibuprofen, excedrin, etc. . .
they ALL give me ringing in the ears . . otherwise I don't have any. .. .
.just white noise.
Debs

--- On Thu, 4/15/10, Lydia Brennan <> wrote:

From: Lydia Brennan <>
Subject: Re: DN suggestions
To: "" <>
Date: Thursday, April 15, 2010, 4:53 PM

The psychiatrist at my office suggested Melatonin for ringing in the ears.
Just started taking it myself, but no noticable difference yet.

Lydia



On Apr 14, 2010, at 11:10 PM, "Maria Samson" <> wrote:

> does anyone take any supplements that help with vertigo, migranes, ringing
in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. started spinning when laid back in tub horrible day bad migranes also spinning
seems to be when head moves either up or back taking klonipin and
nortriptylene 10 mg any suggestons. feel drained after attack off balnce for 3
months now
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hello everyone.

I'm new here on the DN, but unfortunately not new to the world of dizziness.
I've struggled with BPPV since Dec. 2005. I was at first diagnosed with
vestibular neuronitis, which gradually dissapeared leaving "only" the BPPV
behind and vertigo caused by migraine.

Im not a native English speaker, so I was wondering if you, Ann, could explain
to me what "hydrops" and "MAV" mean? Im of course extremely curious to find
out if there is anything I can do to make the crystals go away and stay away!!
I have tried EVERYTHING it seems, but maybe, hopefully, this is something
new... :-)

Best to you all,
Lise

> Date: Sat, 10 Apr 2010 09:28:04 -0700
> From:
> To:
> Subject: Re: DN suggestions
>
> Maria,
>
> If your diagnosis is correct (hydrops and MAV), it is important to:
>
> 1) get the hydrops under control, often with a low sodium diet (1000 mg/day)
and sometimes adding a diuretic,and
> 2) eliminate MAV (avoid triggers and often meds).
>
> These can cause BPPV, so eliminating these will allow the Epley/Canalith
Repositioning Maneuver to keep the crystals out of the semicircular canal. It
is imperative that you see a PT who is specialized in vestibular disorders to
get the correct treatment. And, of course, work with a neurotologist.
>
> My best,
> Ann Katz, PT
> Austin
>
>
>
>
> ________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. does anyone take any supplements that help with vertigo, migranes, ringing in
ears ear popping etc
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. The psychiatrist at my office suggested Melatonin for ringing in the
ears. Just started taking it myself, but no noticable difference yet.

Lydia




> does anyone take any supplements that help with vertigo, migranes,
> ringing in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Lipoflavanoids for ringing in the ears or there is a generic (special order
from like Walmart)
, ask phramacist, can't remember the generic name ,same thing , much cheaper.
stay away from anything over the counter for headaches, colds, like tylenol,
ibuprofen, excedrin, etc. . .
they ALL give me ringing in the ears . . otherwise I don't have any. .. .
.just white noise.
Debs

--- On Thu, 4/15/10, Lydia Brennan <> wrote:

From: Lydia Brennan <>
Subject: Re: DN suggestions
To: "" <>
Date: Thursday, April 15, 2010, 4:53 PM

The psychiatrist at my office suggested Melatonin for ringing in the ears.
Just started taking it myself, but no noticable difference yet.

Lydia



On Apr 14, 2010, at 11:10 PM, "Maria Samson" <> wrote:

> does anyone take any supplements that help with vertigo, migranes, ringing
in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. started spinning when laid back in tub horrible day bad migranes also spinning
seems to be when head moves either up or back taking klonipin and
nortriptylene 10 mg any suggestons. feel drained after attack off balnce for 3
months now
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. ----- Original Message -----



> started spinning when laid back in tub horrible day bad migranes also
> spinning
> seems to be when head moves either up or back taking klonipin and
> nortriptylene 10 mg any suggestons. feel drained after attack off balnce
> for 3
> months now
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hello everyone.

I'm new here on the DN, but unfortunately not new to the world of dizziness.
I've struggled with BPPV since Dec. 2005. I was at first diagnosed with
vestibular neuronitis, which gradually dissapeared leaving "only" the BPPV
behind and vertigo caused by migraine.

Im not a native English speaker, so I was wondering if you, Ann, could explain
to me what "hydrops" and "MAV" mean? Im of course extremely curious to find
out if there is anything I can do to make the crystals go away and stay away!!
I have tried EVERYTHING it seems, but maybe, hopefully, this is something
new... :-)

Best to you all,
Lise

> Date: Sat, 10 Apr 2010 09:28:04 -0700
> From:
> To:
> Subject: Re: DN suggestions
>
> Maria,
>
> If your diagnosis is correct (hydrops and MAV), it is important to:
>
> 1) get the hydrops under control, often with a low sodium diet (1000 mg/day)
and sometimes adding a diuretic,and
> 2) eliminate MAV (avoid triggers and often meds).
>
> These can cause BPPV, so eliminating these will allow the Epley/Canalith
Repositioning Maneuver to keep the crystals out of the semicircular canal. It
is imperative that you see a PT who is specialized in vestibular disorders to
get the correct treatment. And, of course, work with a neurotologist.
>
> My best,
> Ann Katz, PT
> Austin
>
>
>
>
> ________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. does anyone take any supplements that help with vertigo, migranes, ringing in
ears ear popping etc
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. The psychiatrist at my office suggested Melatonin for ringing in the
ears. Just started taking it myself, but no noticable difference yet.

Lydia




> does anyone take any supplements that help with vertigo, migranes,
> ringing in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Lipoflavanoids for ringing in the ears or there is a generic (special order
from like Walmart)
, ask phramacist, can't remember the generic name ,same thing , much cheaper.
stay away from anything over the counter for headaches, colds, like tylenol,
ibuprofen, excedrin, etc. . .
they ALL give me ringing in the ears . . otherwise I don't have any. .. .
.just white noise.
Debs

--- On Thu, 4/15/10, Lydia Brennan <> wrote:

From: Lydia Brennan <>
Subject: Re: DN suggestions
To: "" <>
Date: Thursday, April 15, 2010, 4:53 PM

The psychiatrist at my office suggested Melatonin for ringing in the ears.
Just started taking it myself, but no noticable difference yet.

Lydia



On Apr 14, 2010, at 11:10 PM, "Maria Samson" <> wrote:

> does anyone take any supplements that help with vertigo, migranes, ringing
in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. started spinning when laid back in tub horrible day bad migranes also spinning
seems to be when head moves either up or back taking klonipin and
nortriptylene 10 mg any suggestons. feel drained after attack off balnce for 3
months now
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. ----- Original Message -----



> started spinning when laid back in tub horrible day bad migranes also
> spinning
> seems to be when head moves either up or back taking klonipin and
> nortriptylene 10 mg any suggestons. feel drained after attack off balnce
> for 3
> months now
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Maria,

I have been in the same position as you since Feb 05 when headaches set in
after VN occurred in Sept 04. Now I'm permanently off balance with a
strong to stronger headache 24/7.

I've tried numbers of drugs to no avail. It seems the only things that have
happened are damages to my teeth from grinding, damages to the stomach, and
high blood pressure. I'm trying to get off Effexor taken until recently at
225mg. This has lowered my blood pressure a bit. I'm out of the danger
zone. I refuse to take another pill for blood pressure.

Several positive things:

I have cut off 98% caffeine and salt, joined the Y and startedYoga. I
modify poses holding onto a chair to prevent falling and never look up -
keeping a straight ahead gaze. Last year I tried the class made me so
nauseous I had to stop.

I ride the recombant bike since adjusting the handle bar forward, I can
brace myself to the back keeping my head and shoulders from moving. I also
do the tread mill always holding on. Both machines measure pulse so I watch
steadily using bio-feedback techniques to lower the pulse through mental
challenge. * *I was introduced to sit down weight lifting machines which
allow me to brace myself. Whatever I do, I am able to control my head and
shoulders.

I also got a pillow which holds my head steady at night. The neurologist
suggested this might decrease strain and it seems to.

All things considered; I haven't been in the 9-10 pain zone, but more
frequently in the 4-6 numbers, which for me is quite good.

I hope this helps. Judith

On Mon, Apr 26, 2010 at 7:49 AM, Lynn Snyder <> wrote:

> ----- Original Message ----- From: "Maria Samson" <>
>
>
>
> started spinning when laid back in tub horrible day bad migranes also
>> spinning
>> seems to be when head moves either up or back taking klonipin and
>> nortriptylene 10 mg any suggestons. feel drained after attack off balnce
>> for 3
>> months now
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hello everyone.

I'm new here on the DN, but unfortunately not new to the world of dizziness.
I've struggled with BPPV since Dec. 2005. I was at first diagnosed with
vestibular neuronitis, which gradually dissapeared leaving "only" the BPPV
behind and vertigo caused by migraine.

Im not a native English speaker, so I was wondering if you, Ann, could explain
to me what "hydrops" and "MAV" mean? Im of course extremely curious to find
out if there is anything I can do to make the crystals go away and stay away!!
I have tried EVERYTHING it seems, but maybe, hopefully, this is something
new... :-)

Best to you all,
Lise

> Date: Sat, 10 Apr 2010 09:28:04 -0700
> From:
> To:
> Subject: Re: DN suggestions
>
> Maria,
>
> If your diagnosis is correct (hydrops and MAV), it is important to:
>
> 1) get the hydrops under control, often with a low sodium diet (1000 mg/day)
and sometimes adding a diuretic,and
> 2) eliminate MAV (avoid triggers and often meds).
>
> These can cause BPPV, so eliminating these will allow the Epley/Canalith
Repositioning Maneuver to keep the crystals out of the semicircular canal. It
is imperative that you see a PT who is specialized in vestibular disorders to
get the correct treatment. And, of course, work with a neurotologist.
>
> My best,
> Ann Katz, PT
> Austin
>
>
>
>
> ________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. does anyone take any supplements that help with vertigo, migranes, ringing in
ears ear popping etc
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. The psychiatrist at my office suggested Melatonin for ringing in the
ears. Just started taking it myself, but no noticable difference yet.

Lydia




> does anyone take any supplements that help with vertigo, migranes,
> ringing in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Lipoflavanoids for ringing in the ears or there is a generic (special order
from like Walmart)
, ask phramacist, can't remember the generic name ,same thing , much cheaper.
stay away from anything over the counter for headaches, colds, like tylenol,
ibuprofen, excedrin, etc. . .
they ALL give me ringing in the ears . . otherwise I don't have any. .. .
.just white noise.
Debs

--- On Thu, 4/15/10, Lydia Brennan <> wrote:

From: Lydia Brennan <>
Subject: Re: DN suggestions
To: "" <>
Date: Thursday, April 15, 2010, 4:53 PM

The psychiatrist at my office suggested Melatonin for ringing in the ears.
Just started taking it myself, but no noticable difference yet.

Lydia



On Apr 14, 2010, at 11:10 PM, "Maria Samson" <> wrote:

> does anyone take any supplements that help with vertigo, migranes, ringing
in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. started spinning when laid back in tub horrible day bad migranes also spinning
seems to be when head moves either up or back taking klonipin and
nortriptylene 10 mg any suggestons. feel drained after attack off balnce for 3
months now
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. ----- Original Message -----



> started spinning when laid back in tub horrible day bad migranes also
> spinning
> seems to be when head moves either up or back taking klonipin and
> nortriptylene 10 mg any suggestons. feel drained after attack off balnce
> for 3
> months now
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Maria,

I have been in the same position as you since Feb 05 when headaches set in
after VN occurred in Sept 04. Now I'm permanently off balance with a
strong to stronger headache 24/7.

I've tried numbers of drugs to no avail. It seems the only things that have
happened are damages to my teeth from grinding, damages to the stomach, and
high blood pressure. I'm trying to get off Effexor taken until recently at
225mg. This has lowered my blood pressure a bit. I'm out of the danger
zone. I refuse to take another pill for blood pressure.

Several positive things:

I have cut off 98% caffeine and salt, joined the Y and startedYoga. I
modify poses holding onto a chair to prevent falling and never look up -
keeping a straight ahead gaze. Last year I tried the class made me so
nauseous I had to stop.

I ride the recombant bike since adjusting the handle bar forward, I can
brace myself to the back keeping my head and shoulders from moving. I also
do the tread mill always holding on. Both machines measure pulse so I watch
steadily using bio-feedback techniques to lower the pulse through mental
challenge. * *I was introduced to sit down weight lifting machines which
allow me to brace myself. Whatever I do, I am able to control my head and
shoulders.

I also got a pillow which holds my head steady at night. The neurologist
suggested this might decrease strain and it seems to.

All things considered; I haven't been in the 9-10 pain zone, but more
frequently in the 4-6 numbers, which for me is quite good.

I hope this helps. Judith

On Mon, Apr 26, 2010 at 7:49 AM, Lynn Snyder <> wrote:

> ----- Original Message ----- From: "Maria Samson" <>
>
>
>
> started spinning when laid back in tub horrible day bad migranes also
>> spinning
>> seems to be when head moves either up or back taking klonipin and
>> nortriptylene 10 mg any suggestons. feel drained after attack off balnce
>> for 3
>> months now
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. ----- Original Message -----
From: "Judith Kypragora" <>

> All things considered; I haven't been in the 9-10 pain zone, but more
> frequently in the 4-6 numbers, which for me is quite good.
---------------------------
You are an inspiration & I hope we can share even better health with you.

Love,
Lynn Snyder
East Central Iowa
AIED & MAV
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh Maria I wish I could help you. We have both been going thru this about the same time. I don't have young kids and can't even imagine how hard that would be. I have been wondering if .maybe this is something I need to learn to live with but that thought is so depressing. My very best wishes to you.
Teresa
i hold the more helpless a creature the more entitled it is to the protection of man from the cruelty of man Gandhi

-----Original Message-----
Date: Sat, 10 Apr 2010 07:47:59
Subject: DN suggestions

ok I have been told I have hydrops which started from vestibular neuritis,
also vestibular migranes. also tested positive for bppv they put crystals back
but strill feel bad. I had this done 3 times. taking klonipin, fluid
pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
for it and if i start to have a roblem we stop. What do u think? I am so sick
what choice do I have. I have no quality of life now. I also increased my
lexapro because of the clinical deprssion. Only 43 and way to young for this.
I need help I have to finish raising my girls they are at a critical age.(
this is going on week 9 since my original spinning)
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.
Maria,

If your diagnosis is correct (hydrops and MAV), it is important to:

1) get the hydrops under control, often with a low sodium diet (1000 mg/day) and sometimes adding a diuretic,and
2) eliminate MAV (avoid triggers and often meds).

These can cause BPPV, so eliminating these will allow the Epley/Canalith Repositioning Maneuver to keep the crystals out of the semicircular canal. It is imperative that you see a PT who is specialized in vestibular disorders to get the correct treatment. And, of course, work with a neurotologist.

My best,
Ann Katz, PT
Austin




________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Oh hang in there! It is unbelievably hard and depressing. You have to know that you will get better but it is so slow that you need to measure whether you are better than last week or last month. You will get better and we all have no choice but to be patient. Work at it but don't overwork it. I don't think I started balance rehab for 4 or 5 months because it was so hard.

Ask your friends for help.
Ask your spouse for help.
Ask your kids for help.
Have someone else grocery shop. When you do start shopping, do just one aisle and work your way up.
Now there are days when you may feel like you are going backwards but keep active, even it that means holding someones arm and walking a little outside. Do that eveyday for a week and then do a little more. Then try some steps by yourself. When your vision is all jumpy, laugh and say how gross! Explain it to your family by asking them to imagine if they were watching a video someone made and the camera was moving all around.

Do the rehab. Get a ride and go if you can 3 days a week then practice with someone at your side everyday.

It will get better. Your kids will be stronger people when you give them info and tell them what it is like to be strong and fight. I had to tell myself over and over that it could be worse, I could have a brain tumor and that would be harder on my family. You'll get your cognitive thinking back, you'll speak the same (not loose words or speak slowly).

Hang in there.
Ruth

When you are a woman, it seems as though the rest of the world just wants you to do for them. You will be able to be there for everyone as you heal.
---- Maria Samson <> wrote:
> ok I have been told I have hydrops which started from vestibular neuritis,
> also vestibular migranes. also tested positive for bppv they put crystals back
> but strill feel bad. I had this done 3 times. taking klonipin, fluid
> pill,pamelor they wnted to try betahistine but i have mild asthma. I say go
> for it and if i start to have a roblem we stop. What do u think? I am so sick
> what choice do I have. I have no quality of life now. I also increased my
> lexapro because of the clinical deprssion. Only 43 and way to young for this.
> I need help I have to finish raising my girls they are at a critical age.(
> this is going on week 9 since my original spinning)
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Maria,

so sorry you are going through all this. have you tried VRT yet? perhaps
that will help.

one thing you said really hit home for me..."I have no quality of life now".
those of us in the dizzinews group know exactly what you are going through.
and the dizzy beast is not selective because there are people in this group
who are much youger and some much older than you. please hang in there,,,it
will get better.

Hugs,,,,,Linda G
Winter Park, FL
vestibular neuritus right ear 2005
perilymph fistular left ear 2008





-----Original Message-----
Sent: Sat, Apr 10, 2010 8:47 am
Subject: DN suggestions


ok I have been told I have hydrops which started from vestibular neuritis,
lso vestibular migranes. also tested positive for bppv they put crystals back
ut strill feel bad. I had this done 3 times. taking klonipin, fluid
ill,pamelor they wnted to try betahistine but i have mild asthma. I say go
or it and if i start to have a roblem we stop. What do u think? I am so sick
hat choice do I have. I have no quality of life now. I also increased my
exapro because of the clinical deprssion. Only 43 and way to young for this.
need help I have to finish raising my girls they are at a critical age.(
his is going on week 9 since my original spinning)
hanks Maria
______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hello everyone.

I'm new here on the DN, but unfortunately not new to the world of dizziness.
I've struggled with BPPV since Dec. 2005. I was at first diagnosed with
vestibular neuronitis, which gradually dissapeared leaving "only" the BPPV
behind and vertigo caused by migraine.

Im not a native English speaker, so I was wondering if you, Ann, could explain
to me what "hydrops" and "MAV" mean? Im of course extremely curious to find
out if there is anything I can do to make the crystals go away and stay away!!
I have tried EVERYTHING it seems, but maybe, hopefully, this is something
new... :-)

Best to you all,
Lise

> Date: Sat, 10 Apr 2010 09:28:04 -0700
> From:
> To:
> Subject: Re: DN suggestions
>
> Maria,
>
> If your diagnosis is correct (hydrops and MAV), it is important to:
>
> 1) get the hydrops under control, often with a low sodium diet (1000 mg/day)
and sometimes adding a diuretic,and
> 2) eliminate MAV (avoid triggers and often meds).
>
> These can cause BPPV, so eliminating these will allow the Epley/Canalith
Repositioning Maneuver to keep the crystals out of the semicircular canal. It
is imperative that you see a PT who is specialized in vestibular disorders to
get the correct treatment. And, of course, work with a neurotologist.
>
> My best,
> Ann Katz, PT
> Austin
>
>
>
>
> ________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. does anyone take any supplements that help with vertigo, migranes, ringing in
ears ear popping etc
Thanks Maria
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. The psychiatrist at my office suggested Melatonin for ringing in the
ears. Just started taking it myself, but no noticable difference yet.

Lydia




> does anyone take any supplements that help with vertigo, migranes,
> ringing in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Lipoflavanoids for ringing in the ears or there is a generic (special order
from like Walmart)
, ask phramacist, can't remember the generic name ,same thing , much cheaper.
stay away from anything over the counter for headaches, colds, like tylenol,
ibuprofen, excedrin, etc. . .
they ALL give me ringing in the ears . . otherwise I don't have any. .. .
.just white noise.
Debs

--- On Thu, 4/15/10, Lydia Brennan <> wrote:

From: Lydia Brennan <>
Subject: Re: DN suggestions
To: "" <>
Date: Thursday, April 15, 2010, 4:53 PM

The psychiatrist at my office suggested Melatonin for ringing in the ears.
Just started taking it myself, but no noticable difference yet.

Lydia



On Apr 14, 2010, at 11:10 PM, "Maria Samson" <> wrote:

> does anyone take any supplements that help with vertigo, migranes, ringing
in
> ears ear popping etc
> Thanks Maria
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. started spinning when laid back in tub horrible day bad migranes also spinning
seems to be when head moves either up or back taking klonipin and
nortriptylene 10 mg any suggestons. feel drained after attack off balnce for 3
months now
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. ----- Original Message -----



> started spinning when laid back in tub horrible day bad migranes also
> spinning
> seems to be when head moves either up or back taking klonipin and
> nortriptylene 10 mg any suggestons. feel drained after attack off balnce
> for 3
> months now
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Maria,

I have been in the same position as you since Feb 05 when headaches set in
after VN occurred in Sept 04. Now I'm permanently off balance with a
strong to stronger headache 24/7.

I've tried numbers of drugs to no avail. It seems the only things that have
happened are damages to my teeth from grinding, damages to the stomach, and
high blood pressure. I'm trying to get off Effexor taken until recently at
225mg. This has lowered my blood pressure a bit. I'm out of the danger
zone. I refuse to take another pill for blood pressure.

Several positive things:

I have cut off 98% caffeine and salt, joined the Y and startedYoga. I
modify poses holding onto a chair to prevent falling and never look up -
keeping a straight ahead gaze. Last year I tried the class made me so
nauseous I had to stop.

I ride the recombant bike since adjusting the handle bar forward, I can
brace myself to the back keeping my head and shoulders from moving. I also
do the tread mill always holding on. Both machines measure pulse so I watch
steadily using bio-feedback techniques to lower the pulse through mental
challenge. * *I was introduced to sit down weight lifting machines which
allow me to brace myself. Whatever I do, I am able to control my head and
shoulders.

I also got a pillow which holds my head steady at night. The neurologist
suggested this might decrease strain and it seems to.

All things considered; I haven't been in the 9-10 pain zone, but more
frequently in the 4-6 numbers, which for me is quite good.

I hope this helps. Judith

On Mon, Apr 26, 2010 at 7:49 AM, Lynn Snyder <> wrote:

> ----- Original Message ----- From: "Maria Samson" <>
>
>
>
> started spinning when laid back in tub horrible day bad migranes also
>> spinning
>> seems to be when head moves either up or back taking klonipin and
>> nortriptylene 10 mg any suggestons. feel drained after attack off balnce
>> for 3
>> months now
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. ----- Original Message -----
From: "Judith Kypragora" <>

> All things considered; I haven't been in the 9-10 pain zone, but more
> frequently in the 4-6 numbers, which for me is quite good.
---------------------------
You are an inspiration & I hope we can share even better health with you.

Love,
Lynn Snyder
East Central Iowa
AIED & MAV
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Have you all tried a neck collar when dizzy? When I was at my dizziest I
tried it(had an old one from prior car accident). I had to go to a
gathering where I knew there would be more people than I am usually
around so I wore the collar and it kept me from turning my head and got
less dizzy. Not a cure but temporary solution.

Karen G/Omaha


On Mon, Apr 26, 2010 at 7:34 AM, Judith Kypragora wrote:

> Hi Maria,
>
> I have been in the same position as you since Feb 05 when headaches
> set in
> after VN occurred in Sept 04. Now I'm permanently off balance with a
> strong to stronger headache 24/7.
>
> I've tried numbers of drugs to no avail. It seems the only things
> that have
> happened are damages to my teeth from grinding, damages to the
> stomach, and
> high blood pressure. I'm trying to get off Effexor taken until
> recently at
> 225mg. This has lowered my blood pressure a bit. I'm out of the
> danger
> zone. I refuse to take another pill for blood pressure.
>
> Several positive things:
>
> I have cut off 98% caffeine and salt, joined the Y and startedYoga. I
> modify poses holding onto a chair to prevent falling and never look up
> -
> keeping a straight ahead gaze. Last year I tried the class made me
> so
> nauseous I had to stop.
>
> I ride the recombant bike since adjusting the handle bar forward, I
> can
> brace myself to the back keeping my head and shoulders from moving. I
> also
> do the tread mill always holding on. Both machines measure pulse so I
> watch
> steadily using bio-feedback techniques to lower the pulse through
> mental
> challenge. * *I was introduced to sit down weight lifting machines
> which
> allow me to brace myself. Whatever I do, I am able to control my
> head and
> shoulders.
>
> I also got a pillow which holds my head steady at night. The
> neurologist
> suggested this might decrease strain and it seems to.
>
> All things considered; I haven't been in the 9-10 pain zone, but more
> frequently in the 4-6 numbers, which for me is quite good.
>
> I hope this helps. Judith
>
> On Mon, Apr 26, 2010 at 7:49 AM, Lynn Snyder <>
> wrote:
>
>> ----- Original Message ----- From: "Maria Samson" <>
>>
>>
>>
>> started spinning when laid back in tub horrible day bad migranes also
>>> spinning
>>> seems to be when head moves either up or back taking klonipin and
>>> nortriptylene 10 mg any suggestons. feel drained after attack off
>>> balnce
>>> for 3
>>> months now
>>> _______________________________________________
___________________________________________________

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