I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,

Have you ever had an OB/GYN examine your intimate parts to see if certain
conditions can contribute to your bowel/bladder symptoms?
docsue


In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,

I will be 49 on July 18.

It was over a year ago that I started having pain in my hip joints. If I
walked farther and faster than usual I took on a sort of lumbering
side-to-side gait. My primary care doc said she usually liked to try
something else before exposing people to X-rays, so she prescribed an
anti-inflammatory. She was thinking arthritis at the time. When I'd
completed the anti-inflammatory the pain went away & didn't come back for
awhile. When it did come back I had the X-ray of my hips which showed no
arthritis or anything else. Then she referred me to an audiologist. After
VNG and complete audiological exam the audiologist recommended a
neurological consult.

In the time between then and now I started feeling very off-balance, never
venturing far from something to lean on. I've fallen 2 or 3 times both at
home and on the street. The hip joint pain has never come back as bad or
constant as it was before, but I sometimes have it along with pain in my
shoulders, which I think is caused by using my upper body to support
myself in ways I wouldn't if I could balance normally.

The first time I ever had a dizzy spell was months ago. I had just taken a
long bath in very hot water. I used to love to do that. After I got out of
the tub I felt dizzy & nauseous and then threw up. After that I don't take
such hot baths anymore.

Then, on June 6th my daughter's school had its annual carnival. It was a
very hot day. After hanging out in the park for hours in the heat, my
daughter and I walked about 3 blocks home and climbed the 3 flights of
stairs to our apartment. I felt nauseous and the room was spinning like I
was drunk. I drank seltzer and didn't throw up. Since then I've become
increasingly aware of a mild dizzy sensation most of the time when
walking. I don't have it when I'm still unless I move my head around a
lot.

For a couple of years now I've had difficulty emptying my bowels and
bladder, resulting in frequent urinary tract infections. The usual fiber
type preparations for constipation just give me a stomach ache. Prunes
work, but even then it's an effort to expel the stool. It's like nothing
wants to come out. (I forgot to tell the neurologist this the first time I
saw him. He did not know about it before seeing the results or our
conversation yesterday.)

I will make an appointment with primary care doc, & also see the other
neurologist in Sept. Thank you both for your replies. I'll keep you
posted.

Linda



> I totally agree with DocSue (who ever doesn't?) You need another
opinion.
> How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where
I
> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
of
> that nonsence, I was told I needed a shrink to help me resolve some
latent
> trauma responsible for mimicking physical symptoms (conversion
disorder).
>
> Usually a spinal tap is done to check for murky fluid. Help me out
DocSue!!
> Mine was clear as distilled water meaning no infections. Plus I was
really
> too old (50) and who gets MS from an ear infection?
>
> Judith rafting down memory currents
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,

Have you ever had an OB/GYN examine your intimate parts to see if certain
conditions can contribute to your bowel/bladder symptoms?
docsue


In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,

I will be 49 on July 18.

It was over a year ago that I started having pain in my hip joints. If I
walked farther and faster than usual I took on a sort of lumbering
side-to-side gait. My primary care doc said she usually liked to try
something else before exposing people to X-rays, so she prescribed an
anti-inflammatory. She was thinking arthritis at the time. When I'd
completed the anti-inflammatory the pain went away & didn't come back for
awhile. When it did come back I had the X-ray of my hips which showed no
arthritis or anything else. Then she referred me to an audiologist. After
VNG and complete audiological exam the audiologist recommended a
neurological consult.

In the time between then and now I started feeling very off-balance, never
venturing far from something to lean on. I've fallen 2 or 3 times both at
home and on the street. The hip joint pain has never come back as bad or
constant as it was before, but I sometimes have it along with pain in my
shoulders, which I think is caused by using my upper body to support
myself in ways I wouldn't if I could balance normally.

The first time I ever had a dizzy spell was months ago. I had just taken a
long bath in very hot water. I used to love to do that. After I got out of
the tub I felt dizzy & nauseous and then threw up. After that I don't take
such hot baths anymore.

Then, on June 6th my daughter's school had its annual carnival. It was a
very hot day. After hanging out in the park for hours in the heat, my
daughter and I walked about 3 blocks home and climbed the 3 flights of
stairs to our apartment. I felt nauseous and the room was spinning like I
was drunk. I drank seltzer and didn't throw up. Since then I've become
increasingly aware of a mild dizzy sensation most of the time when
walking. I don't have it when I'm still unless I move my head around a
lot.

For a couple of years now I've had difficulty emptying my bowels and
bladder, resulting in frequent urinary tract infections. The usual fiber
type preparations for constipation just give me a stomach ache. Prunes
work, but even then it's an effort to expel the stool. It's like nothing
wants to come out. (I forgot to tell the neurologist this the first time I
saw him. He did not know about it before seeing the results or our
conversation yesterday.)

I will make an appointment with primary care doc, & also see the other
neurologist in Sept. Thank you both for your replies. I'll keep you
posted.

Linda



> I totally agree with DocSue (who ever doesn't?) You need another
opinion.
> How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where
I
> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
of
> that nonsence, I was told I needed a shrink to help me resolve some
latent
> trauma responsible for mimicking physical symptoms (conversion
disorder).
>
> Usually a spinal tap is done to check for murky fluid. Help me out
DocSue!!
> Mine was clear as distilled water meaning no infections. Plus I was
really
> too old (50) and who gets MS from an ear infection?
>
> Judith rafting down memory currents
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,
I'm raising my hand (I'm standing behind Judith) to getting a second opinion.
. ..MRI's can give a lot of false positives.
I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion, he
said
that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
said "take
these home and throw them away .. .you have a normal brain, there's NOTHING at
all
on here. So there ya go . ... I second the second opinion .. .Jeepers that
didn't come out
right .
Debs aka Mable



Subject: DN MRI results part II
Date: Thursday, July 8, 2010, 5:11 PM

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,

Have you ever had an OB/GYN examine your intimate parts to see if certain
conditions can contribute to your bowel/bladder symptoms?
docsue


In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,

I will be 49 on July 18.

It was over a year ago that I started having pain in my hip joints. If I
walked farther and faster than usual I took on a sort of lumbering
side-to-side gait. My primary care doc said she usually liked to try
something else before exposing people to X-rays, so she prescribed an
anti-inflammatory. She was thinking arthritis at the time. When I'd
completed the anti-inflammatory the pain went away & didn't come back for
awhile. When it did come back I had the X-ray of my hips which showed no
arthritis or anything else. Then she referred me to an audiologist. After
VNG and complete audiological exam the audiologist recommended a
neurological consult.

In the time between then and now I started feeling very off-balance, never
venturing far from something to lean on. I've fallen 2 or 3 times both at
home and on the street. The hip joint pain has never come back as bad or
constant as it was before, but I sometimes have it along with pain in my
shoulders, which I think is caused by using my upper body to support
myself in ways I wouldn't if I could balance normally.

The first time I ever had a dizzy spell was months ago. I had just taken a
long bath in very hot water. I used to love to do that. After I got out of
the tub I felt dizzy & nauseous and then threw up. After that I don't take
such hot baths anymore.

Then, on June 6th my daughter's school had its annual carnival. It was a
very hot day. After hanging out in the park for hours in the heat, my
daughter and I walked about 3 blocks home and climbed the 3 flights of
stairs to our apartment. I felt nauseous and the room was spinning like I
was drunk. I drank seltzer and didn't throw up. Since then I've become
increasingly aware of a mild dizzy sensation most of the time when
walking. I don't have it when I'm still unless I move my head around a
lot.

For a couple of years now I've had difficulty emptying my bowels and
bladder, resulting in frequent urinary tract infections. The usual fiber
type preparations for constipation just give me a stomach ache. Prunes
work, but even then it's an effort to expel the stool. It's like nothing
wants to come out. (I forgot to tell the neurologist this the first time I
saw him. He did not know about it before seeing the results or our
conversation yesterday.)

I will make an appointment with primary care doc, & also see the other
neurologist in Sept. Thank you both for your replies. I'll keep you
posted.

Linda



> I totally agree with DocSue (who ever doesn't?) You need another
opinion.
> How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where
I
> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
of
> that nonsence, I was told I needed a shrink to help me resolve some
latent
> trauma responsible for mimicking physical symptoms (conversion
disorder).
>
> Usually a spinal tap is done to check for murky fluid. Help me out
DocSue!!
> Mine was clear as distilled water meaning no infections. Plus I was
really
> too old (50) and who gets MS from an ear infection?
>
> Judith rafting down memory currents
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,
I'm raising my hand (I'm standing behind Judith) to getting a second opinion.
. ..MRI's can give a lot of false positives.
I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion, he
said
that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
said "take
these home and throw them away .. .you have a normal brain, there's NOTHING at
all
on here. So there ya go . ... I second the second opinion .. .Jeepers that
didn't come out
right .
Debs aka Mable



Subject: DN MRI results part II
Date: Thursday, July 8, 2010, 5:11 PM

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. My plan is to see my primary care doctor a week from Tuesday, show her the
MRI pix, tell her the neurology consult she referred me for finally came
through for September, tell her what the dr. who ordered the MRI said, and
see what she says. Another friend gave me the name of a neurologist. Maybe
I'll find out what his fee is & ask him to look at the pix too.

The idea of a spinal tap has freaked me out ever since the Exorcist was
excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
possessed by the devil so I'd never have to have a spinal tap. (I'm
Jewish.) I'm not good with medical stuff, and I gave birth with no
medication whatsoever, happily.

Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
list of questions, & one of them will be what would be his next step for
diagnosis.

Linda

> Agree, one test to help elucidate the diagnose of multiple sclerosis is a
> spinal tap....but I didn't want to heap on more tests without Linda
> taking
> a deep breath and choosing a path that works for her. I agree, there
> appears to be many "false" MS diagnoses on this board for vestibular
> disorders!
> Also, there may be newer, less invasive tests to rule in/out MS than a
> spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> might be
> in order to rule out viral/bacterial causes. I had a spinal tap at the
> beginning of my horrible journey to assess the MS question; it was also
> negative. The tap didn't hurt that much and it was all over in 15
> minutes. I
> just thought about all those women I delivered over the years that had
> epidurals placed in!
> docsue
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,

Have you ever had an OB/GYN examine your intimate parts to see if certain
conditions can contribute to your bowel/bladder symptoms?
docsue


In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,

I will be 49 on July 18.

It was over a year ago that I started having pain in my hip joints. If I
walked farther and faster than usual I took on a sort of lumbering
side-to-side gait. My primary care doc said she usually liked to try
something else before exposing people to X-rays, so she prescribed an
anti-inflammatory. She was thinking arthritis at the time. When I'd
completed the anti-inflammatory the pain went away & didn't come back for
awhile. When it did come back I had the X-ray of my hips which showed no
arthritis or anything else. Then she referred me to an audiologist. After
VNG and complete audiological exam the audiologist recommended a
neurological consult.

In the time between then and now I started feeling very off-balance, never
venturing far from something to lean on. I've fallen 2 or 3 times both at
home and on the street. The hip joint pain has never come back as bad or
constant as it was before, but I sometimes have it along with pain in my
shoulders, which I think is caused by using my upper body to support
myself in ways I wouldn't if I could balance normally.

The first time I ever had a dizzy spell was months ago. I had just taken a
long bath in very hot water. I used to love to do that. After I got out of
the tub I felt dizzy & nauseous and then threw up. After that I don't take
such hot baths anymore.

Then, on June 6th my daughter's school had its annual carnival. It was a
very hot day. After hanging out in the park for hours in the heat, my
daughter and I walked about 3 blocks home and climbed the 3 flights of
stairs to our apartment. I felt nauseous and the room was spinning like I
was drunk. I drank seltzer and didn't throw up. Since then I've become
increasingly aware of a mild dizzy sensation most of the time when
walking. I don't have it when I'm still unless I move my head around a
lot.

For a couple of years now I've had difficulty emptying my bowels and
bladder, resulting in frequent urinary tract infections. The usual fiber
type preparations for constipation just give me a stomach ache. Prunes
work, but even then it's an effort to expel the stool. It's like nothing
wants to come out. (I forgot to tell the neurologist this the first time I
saw him. He did not know about it before seeing the results or our
conversation yesterday.)

I will make an appointment with primary care doc, & also see the other
neurologist in Sept. Thank you both for your replies. I'll keep you
posted.

Linda



> I totally agree with DocSue (who ever doesn't?) You need another
opinion.
> How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where
I
> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
of
> that nonsence, I was told I needed a shrink to help me resolve some
latent
> trauma responsible for mimicking physical symptoms (conversion
disorder).
>
> Usually a spinal tap is done to check for murky fluid. Help me out
DocSue!!
> Mine was clear as distilled water meaning no infections. Plus I was
really
> too old (50) and who gets MS from an ear infection?
>
> Judith rafting down memory currents
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,
I'm raising my hand (I'm standing behind Judith) to getting a second opinion.
. ..MRI's can give a lot of false positives.
I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion, he
said
that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
said "take
these home and throw them away .. .you have a normal brain, there's NOTHING at
all
on here. So there ya go . ... I second the second opinion .. .Jeepers that
didn't come out
right .
Debs aka Mable



Subject: DN MRI results part II
Date: Thursday, July 8, 2010, 5:11 PM

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. My plan is to see my primary care doctor a week from Tuesday, show her the
MRI pix, tell her the neurology consult she referred me for finally came
through for September, tell her what the dr. who ordered the MRI said, and
see what she says. Another friend gave me the name of a neurologist. Maybe
I'll find out what his fee is & ask him to look at the pix too.

The idea of a spinal tap has freaked me out ever since the Exorcist was
excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
possessed by the devil so I'd never have to have a spinal tap. (I'm
Jewish.) I'm not good with medical stuff, and I gave birth with no
medication whatsoever, happily.

Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
list of questions, & one of them will be what would be his next step for
diagnosis.

Linda

> Agree, one test to help elucidate the diagnose of multiple sclerosis is a
> spinal tap....but I didn't want to heap on more tests without Linda
> taking
> a deep breath and choosing a path that works for her. I agree, there
> appears to be many "false" MS diagnoses on this board for vestibular
> disorders!
> Also, there may be newer, less invasive tests to rule in/out MS than a
> spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> might be
> in order to rule out viral/bacterial causes. I had a spinal tap at the
> beginning of my horrible journey to assess the MS question; it was also
> negative. The tap didn't hurt that much and it was all over in 15
> minutes. I
> just thought about all those women I delivered over the years that had
> epidurals placed in!
> docsue
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. No, I haven't.


> Linda,
>
> Have you ever had an OB/GYN examine your intimate parts to see if certain
> conditions can contribute to your bowel/bladder symptoms?
> docsue
>
>
> In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,
>
> I will be 49 on July 18.
>
> It was over a year ago that I started having pain in my hip joints. If I
> walked farther and faster than usual I took on a sort of lumbering
> side-to-side gait. My primary care doc said she usually liked to try
> something else before exposing people to X-rays, so she prescribed an
> anti-inflammatory. She was thinking arthritis at the time. When I'd
> completed the anti-inflammatory the pain went away & didn't come back for
> awhile. When it did come back I had the X-ray of my hips which showed no
> arthritis or anything else. Then she referred me to an audiologist. After
> VNG and complete audiological exam the audiologist recommended a
> neurological consult.
>
> In the time between then and now I started feeling very off-balance,
> never
> venturing far from something to lean on. I've fallen 2 or 3 times both at
> home and on the street. The hip joint pain has never come back as bad or
> constant as it was before, but I sometimes have it along with pain in my
> shoulders, which I think is caused by using my upper body to support
> myself in ways I wouldn't if I could balance normally.
>
> The first time I ever had a dizzy spell was months ago. I had just taken
> a
> long bath in very hot water. I used to love to do that. After I got out
> of
> the tub I felt dizzy & nauseous and then threw up. After that I don't
> take
> such hot baths anymore.
>
> Then, on June 6th my daughter's school had its annual carnival. It was a
> very hot day. After hanging out in the park for hours in the heat, my
> daughter and I walked about 3 blocks home and climbed the 3 flights of
> stairs to our apartment. I felt nauseous and the room was spinning like I
> was drunk. I drank seltzer and didn't throw up. Since then I've become
> increasingly aware of a mild dizzy sensation most of the time when
> walking. I don't have it when I'm still unless I move my head around a
> lot.
>
> For a couple of years now I've had difficulty emptying my bowels and
> bladder, resulting in frequent urinary tract infections. The usual fiber
> type preparations for constipation just give me a stomach ache. Prunes
> work, but even then it's an effort to expel the stool. It's like nothing
> wants to come out. (I forgot to tell the neurologist this the first time
> I
> saw him. He did not know about it before seeing the results or our
> conversation yesterday.)
>
> I will make an appointment with primary care doc, & also see the other
> neurologist in Sept. Thank you both for your replies. I'll keep you
> posted.
>
> Linda
>
>
>
>> I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
>> How old are you anyway? What brought all these symptoms on? I
>> started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
>> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
> of
>> that nonsence, I was told I needed a shrink to help me resolve some
> latent
>> trauma responsible for mimicking physical symptoms (conversion
> disorder).
>>
>> Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
>> Mine was clear as distilled water meaning no infections. Plus I was
> really
>> too old (50) and who gets MS from an ear infection?
>>
>> Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,

Have you ever had an OB/GYN examine your intimate parts to see if certain
conditions can contribute to your bowel/bladder symptoms?
docsue


In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,

I will be 49 on July 18.

It was over a year ago that I started having pain in my hip joints. If I
walked farther and faster than usual I took on a sort of lumbering
side-to-side gait. My primary care doc said she usually liked to try
something else before exposing people to X-rays, so she prescribed an
anti-inflammatory. She was thinking arthritis at the time. When I'd
completed the anti-inflammatory the pain went away & didn't come back for
awhile. When it did come back I had the X-ray of my hips which showed no
arthritis or anything else. Then she referred me to an audiologist. After
VNG and complete audiological exam the audiologist recommended a
neurological consult.

In the time between then and now I started feeling very off-balance, never
venturing far from something to lean on. I've fallen 2 or 3 times both at
home and on the street. The hip joint pain has never come back as bad or
constant as it was before, but I sometimes have it along with pain in my
shoulders, which I think is caused by using my upper body to support
myself in ways I wouldn't if I could balance normally.

The first time I ever had a dizzy spell was months ago. I had just taken a
long bath in very hot water. I used to love to do that. After I got out of
the tub I felt dizzy & nauseous and then threw up. After that I don't take
such hot baths anymore.

Then, on June 6th my daughter's school had its annual carnival. It was a
very hot day. After hanging out in the park for hours in the heat, my
daughter and I walked about 3 blocks home and climbed the 3 flights of
stairs to our apartment. I felt nauseous and the room was spinning like I
was drunk. I drank seltzer and didn't throw up. Since then I've become
increasingly aware of a mild dizzy sensation most of the time when
walking. I don't have it when I'm still unless I move my head around a
lot.

For a couple of years now I've had difficulty emptying my bowels and
bladder, resulting in frequent urinary tract infections. The usual fiber
type preparations for constipation just give me a stomach ache. Prunes
work, but even then it's an effort to expel the stool. It's like nothing
wants to come out. (I forgot to tell the neurologist this the first time I
saw him. He did not know about it before seeing the results or our
conversation yesterday.)

I will make an appointment with primary care doc, & also see the other
neurologist in Sept. Thank you both for your replies. I'll keep you
posted.

Linda



> I totally agree with DocSue (who ever doesn't?) You need another
opinion.
> How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where
I
> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
of
> that nonsence, I was told I needed a shrink to help me resolve some
latent
> trauma responsible for mimicking physical symptoms (conversion
disorder).
>
> Usually a spinal tap is done to check for murky fluid. Help me out
DocSue!!
> Mine was clear as distilled water meaning no infections. Plus I was
really
> too old (50) and who gets MS from an ear infection?
>
> Judith rafting down memory currents
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,
I'm raising my hand (I'm standing behind Judith) to getting a second opinion.
. ..MRI's can give a lot of false positives.
I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion, he
said
that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
said "take
these home and throw them away .. .you have a normal brain, there's NOTHING at
all
on here. So there ya go . ... I second the second opinion .. .Jeepers that
didn't come out
right .
Debs aka Mable



Subject: DN MRI results part II
Date: Thursday, July 8, 2010, 5:11 PM

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. My plan is to see my primary care doctor a week from Tuesday, show her the
MRI pix, tell her the neurology consult she referred me for finally came
through for September, tell her what the dr. who ordered the MRI said, and
see what she says. Another friend gave me the name of a neurologist. Maybe
I'll find out what his fee is & ask him to look at the pix too.

The idea of a spinal tap has freaked me out ever since the Exorcist was
excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
possessed by the devil so I'd never have to have a spinal tap. (I'm
Jewish.) I'm not good with medical stuff, and I gave birth with no
medication whatsoever, happily.

Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
list of questions, & one of them will be what would be his next step for
diagnosis.

Linda

> Agree, one test to help elucidate the diagnose of multiple sclerosis is a
> spinal tap....but I didn't want to heap on more tests without Linda
> taking
> a deep breath and choosing a path that works for her. I agree, there
> appears to be many "false" MS diagnoses on this board for vestibular
> disorders!
> Also, there may be newer, less invasive tests to rule in/out MS than a
> spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> might be
> in order to rule out viral/bacterial causes. I had a spinal tap at the
> beginning of my horrible journey to assess the MS question; it was also
> negative. The tap didn't hurt that much and it was all over in 15
> minutes. I
> just thought about all those women I delivered over the years that had
> epidurals placed in!
> docsue
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. No, I haven't.


> Linda,
>
> Have you ever had an OB/GYN examine your intimate parts to see if certain
> conditions can contribute to your bowel/bladder symptoms?
> docsue
>
>
> In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,
>
> I will be 49 on July 18.
>
> It was over a year ago that I started having pain in my hip joints. If I
> walked farther and faster than usual I took on a sort of lumbering
> side-to-side gait. My primary care doc said she usually liked to try
> something else before exposing people to X-rays, so she prescribed an
> anti-inflammatory. She was thinking arthritis at the time. When I'd
> completed the anti-inflammatory the pain went away & didn't come back for
> awhile. When it did come back I had the X-ray of my hips which showed no
> arthritis or anything else. Then she referred me to an audiologist. After
> VNG and complete audiological exam the audiologist recommended a
> neurological consult.
>
> In the time between then and now I started feeling very off-balance,
> never
> venturing far from something to lean on. I've fallen 2 or 3 times both at
> home and on the street. The hip joint pain has never come back as bad or
> constant as it was before, but I sometimes have it along with pain in my
> shoulders, which I think is caused by using my upper body to support
> myself in ways I wouldn't if I could balance normally.
>
> The first time I ever had a dizzy spell was months ago. I had just taken
> a
> long bath in very hot water. I used to love to do that. After I got out
> of
> the tub I felt dizzy & nauseous and then threw up. After that I don't
> take
> such hot baths anymore.
>
> Then, on June 6th my daughter's school had its annual carnival. It was a
> very hot day. After hanging out in the park for hours in the heat, my
> daughter and I walked about 3 blocks home and climbed the 3 flights of
> stairs to our apartment. I felt nauseous and the room was spinning like I
> was drunk. I drank seltzer and didn't throw up. Since then I've become
> increasingly aware of a mild dizzy sensation most of the time when
> walking. I don't have it when I'm still unless I move my head around a
> lot.
>
> For a couple of years now I've had difficulty emptying my bowels and
> bladder, resulting in frequent urinary tract infections. The usual fiber
> type preparations for constipation just give me a stomach ache. Prunes
> work, but even then it's an effort to expel the stool. It's like nothing
> wants to come out. (I forgot to tell the neurologist this the first time
> I
> saw him. He did not know about it before seeing the results or our
> conversation yesterday.)
>
> I will make an appointment with primary care doc, & also see the other
> neurologist in Sept. Thank you both for your replies. I'll keep you
> posted.
>
> Linda
>
>
>
>> I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
>> How old are you anyway? What brought all these symptoms on? I
>> started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
>> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
> of
>> that nonsence, I was told I needed a shrink to help me resolve some
> latent
>> trauma responsible for mimicking physical symptoms (conversion
> disorder).
>>
>> Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
>> Mine was clear as distilled water meaning no infections. Plus I was
> really
>> too old (50) and who gets MS from an ear infection?
>>
>> Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. "Second the second opinion" is almost as good as a "normal abnormality."



> Linda,
> I'm raising my hand (I'm standing behind Judith) to getting a second
> opinion.
> . ..MRI's can give a lot of false positives.
> I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
> Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion,
> he
> said
> that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
> said "take
> these home and throw them away .. .you have a normal brain, there's
> NOTHING at
> all
> on here. So there ya go . ... I second the second opinion .. .Jeepers that
> didn't come out
> right .
> Debs aka Mable
>
>
>
> Subject: DN MRI results part II
> Date: Thursday, July 8, 2010, 5:11 PM
>
> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,

Have you ever had an OB/GYN examine your intimate parts to see if certain
conditions can contribute to your bowel/bladder symptoms?
docsue


In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,

I will be 49 on July 18.

It was over a year ago that I started having pain in my hip joints. If I
walked farther and faster than usual I took on a sort of lumbering
side-to-side gait. My primary care doc said she usually liked to try
something else before exposing people to X-rays, so she prescribed an
anti-inflammatory. She was thinking arthritis at the time. When I'd
completed the anti-inflammatory the pain went away & didn't come back for
awhile. When it did come back I had the X-ray of my hips which showed no
arthritis or anything else. Then she referred me to an audiologist. After
VNG and complete audiological exam the audiologist recommended a
neurological consult.

In the time between then and now I started feeling very off-balance, never
venturing far from something to lean on. I've fallen 2 or 3 times both at
home and on the street. The hip joint pain has never come back as bad or
constant as it was before, but I sometimes have it along with pain in my
shoulders, which I think is caused by using my upper body to support
myself in ways I wouldn't if I could balance normally.

The first time I ever had a dizzy spell was months ago. I had just taken a
long bath in very hot water. I used to love to do that. After I got out of
the tub I felt dizzy & nauseous and then threw up. After that I don't take
such hot baths anymore.

Then, on June 6th my daughter's school had its annual carnival. It was a
very hot day. After hanging out in the park for hours in the heat, my
daughter and I walked about 3 blocks home and climbed the 3 flights of
stairs to our apartment. I felt nauseous and the room was spinning like I
was drunk. I drank seltzer and didn't throw up. Since then I've become
increasingly aware of a mild dizzy sensation most of the time when
walking. I don't have it when I'm still unless I move my head around a
lot.

For a couple of years now I've had difficulty emptying my bowels and
bladder, resulting in frequent urinary tract infections. The usual fiber
type preparations for constipation just give me a stomach ache. Prunes
work, but even then it's an effort to expel the stool. It's like nothing
wants to come out. (I forgot to tell the neurologist this the first time I
saw him. He did not know about it before seeing the results or our
conversation yesterday.)

I will make an appointment with primary care doc, & also see the other
neurologist in Sept. Thank you both for your replies. I'll keep you
posted.

Linda



> I totally agree with DocSue (who ever doesn't?) You need another
opinion.
> How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where
I
> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
of
> that nonsence, I was told I needed a shrink to help me resolve some
latent
> trauma responsible for mimicking physical symptoms (conversion
disorder).
>
> Usually a spinal tap is done to check for murky fluid. Help me out
DocSue!!
> Mine was clear as distilled water meaning no infections. Plus I was
really
> too old (50) and who gets MS from an ear infection?
>
> Judith rafting down memory currents
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,
I'm raising my hand (I'm standing behind Judith) to getting a second opinion.
. ..MRI's can give a lot of false positives.
I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion, he
said
that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
said "take
these home and throw them away .. .you have a normal brain, there's NOTHING at
all
on here. So there ya go . ... I second the second opinion .. .Jeepers that
didn't come out
right .
Debs aka Mable



Subject: DN MRI results part II
Date: Thursday, July 8, 2010, 5:11 PM

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. My plan is to see my primary care doctor a week from Tuesday, show her the
MRI pix, tell her the neurology consult she referred me for finally came
through for September, tell her what the dr. who ordered the MRI said, and
see what she says. Another friend gave me the name of a neurologist. Maybe
I'll find out what his fee is & ask him to look at the pix too.

The idea of a spinal tap has freaked me out ever since the Exorcist was
excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
possessed by the devil so I'd never have to have a spinal tap. (I'm
Jewish.) I'm not good with medical stuff, and I gave birth with no
medication whatsoever, happily.

Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
list of questions, & one of them will be what would be his next step for
diagnosis.

Linda

> Agree, one test to help elucidate the diagnose of multiple sclerosis is a
> spinal tap....but I didn't want to heap on more tests without Linda
> taking
> a deep breath and choosing a path that works for her. I agree, there
> appears to be many "false" MS diagnoses on this board for vestibular
> disorders!
> Also, there may be newer, less invasive tests to rule in/out MS than a
> spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> might be
> in order to rule out viral/bacterial causes. I had a spinal tap at the
> beginning of my horrible journey to assess the MS question; it was also
> negative. The tap didn't hurt that much and it was all over in 15
> minutes. I
> just thought about all those women I delivered over the years that had
> epidurals placed in!
> docsue
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. No, I haven't.


> Linda,
>
> Have you ever had an OB/GYN examine your intimate parts to see if certain
> conditions can contribute to your bowel/bladder symptoms?
> docsue
>
>
> In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,
>
> I will be 49 on July 18.
>
> It was over a year ago that I started having pain in my hip joints. If I
> walked farther and faster than usual I took on a sort of lumbering
> side-to-side gait. My primary care doc said she usually liked to try
> something else before exposing people to X-rays, so she prescribed an
> anti-inflammatory. She was thinking arthritis at the time. When I'd
> completed the anti-inflammatory the pain went away & didn't come back for
> awhile. When it did come back I had the X-ray of my hips which showed no
> arthritis or anything else. Then she referred me to an audiologist. After
> VNG and complete audiological exam the audiologist recommended a
> neurological consult.
>
> In the time between then and now I started feeling very off-balance,
> never
> venturing far from something to lean on. I've fallen 2 or 3 times both at
> home and on the street. The hip joint pain has never come back as bad or
> constant as it was before, but I sometimes have it along with pain in my
> shoulders, which I think is caused by using my upper body to support
> myself in ways I wouldn't if I could balance normally.
>
> The first time I ever had a dizzy spell was months ago. I had just taken
> a
> long bath in very hot water. I used to love to do that. After I got out
> of
> the tub I felt dizzy & nauseous and then threw up. After that I don't
> take
> such hot baths anymore.
>
> Then, on June 6th my daughter's school had its annual carnival. It was a
> very hot day. After hanging out in the park for hours in the heat, my
> daughter and I walked about 3 blocks home and climbed the 3 flights of
> stairs to our apartment. I felt nauseous and the room was spinning like I
> was drunk. I drank seltzer and didn't throw up. Since then I've become
> increasingly aware of a mild dizzy sensation most of the time when
> walking. I don't have it when I'm still unless I move my head around a
> lot.
>
> For a couple of years now I've had difficulty emptying my bowels and
> bladder, resulting in frequent urinary tract infections. The usual fiber
> type preparations for constipation just give me a stomach ache. Prunes
> work, but even then it's an effort to expel the stool. It's like nothing
> wants to come out. (I forgot to tell the neurologist this the first time
> I
> saw him. He did not know about it before seeing the results or our
> conversation yesterday.)
>
> I will make an appointment with primary care doc, & also see the other
> neurologist in Sept. Thank you both for your replies. I'll keep you
> posted.
>
> Linda
>
>
>
>> I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
>> How old are you anyway? What brought all these symptoms on? I
>> started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
>> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
> of
>> that nonsence, I was told I needed a shrink to help me resolve some
> latent
>> trauma responsible for mimicking physical symptoms (conversion
> disorder).
>>
>> Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
>> Mine was clear as distilled water meaning no infections. Plus I was
> really
>> too old (50) and who gets MS from an ear infection?
>>
>> Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. "Second the second opinion" is almost as good as a "normal abnormality."



> Linda,
> I'm raising my hand (I'm standing behind Judith) to getting a second
> opinion.
> . ..MRI's can give a lot of false positives.
> I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
> Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion,
> he
> said
> that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
> said "take
> these home and throw them away .. .you have a normal brain, there's
> NOTHING at
> all
> on here. So there ya go . ... I second the second opinion .. .Jeepers that
> didn't come out
> right .
> Debs aka Mable
>
>
>
> Subject: DN MRI results part II
> Date: Thursday, July 8, 2010, 5:11 PM
>
> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Yes, Mable is rather brilliant with words. What a girl!!! Hi Mable. It's
me in ME


> "Second the second opinion" is almost as good as a "normal abnormality."
>
>
>
> > Linda,
> > I'm raising my hand (I'm standing behind Judith) to getting a second
> > opinion.
> > . ..MRI's can give a lot of false positives.
> > I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
> > Had MRI of head , was told I had an ????angioma, went to 2nd MRI
> opinion,
> > he
> > said
> > that's a "normal abnormality" . . .3rd neurologist looked at MRI films,
> he
> > said "take
> > these home and throw them away .. .you have a normal brain, there's
> > NOTHING at
> > all
> > on here. So there ya go . ... I second the second opinion .. .Jeepers
> that
> > didn't come out
> > right .
> > Debs aka Mable
> >
> >
> >
> > Subject: DN MRI results part II
> > Date: Thursday, July 8, 2010, 5:11 PM
> >
> > I went to see the neurologist today, & he said my results look like a
> mild
> > case of multiple sclerosis.
> >
> > He started out saying this is a "possibility" but then he sounded more
> and
> > more sure, then spent a lot of time reassuring me that it wouldn't be
> > disabling...(not that i don't feel somewhat disabled already), gave me
> his
> > home number, and the MRI pix, said make a list of questions & call him
> > Sunday night. (He is charging me nothing, by the way, & I paid nothing
> for
> > the MRI. He saw me as a favor to my boss.)
> >
> > I don't know what to think. I know he has a lot of experience looking at
> > MRI results.
> >
> > When I got home from that the neurology referral appointment I've been
> > waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> > primary care doc, the one who referred me for audiology & then neurology.
> >
> > Linda
> > _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,

Have you ever had an OB/GYN examine your intimate parts to see if certain
conditions can contribute to your bowel/bladder symptoms?
docsue


In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,

I will be 49 on July 18.

It was over a year ago that I started having pain in my hip joints. If I
walked farther and faster than usual I took on a sort of lumbering
side-to-side gait. My primary care doc said she usually liked to try
something else before exposing people to X-rays, so she prescribed an
anti-inflammatory. She was thinking arthritis at the time. When I'd
completed the anti-inflammatory the pain went away & didn't come back for
awhile. When it did come back I had the X-ray of my hips which showed no
arthritis or anything else. Then she referred me to an audiologist. After
VNG and complete audiological exam the audiologist recommended a
neurological consult.

In the time between then and now I started feeling very off-balance, never
venturing far from something to lean on. I've fallen 2 or 3 times both at
home and on the street. The hip joint pain has never come back as bad or
constant as it was before, but I sometimes have it along with pain in my
shoulders, which I think is caused by using my upper body to support
myself in ways I wouldn't if I could balance normally.

The first time I ever had a dizzy spell was months ago. I had just taken a
long bath in very hot water. I used to love to do that. After I got out of
the tub I felt dizzy & nauseous and then threw up. After that I don't take
such hot baths anymore.

Then, on June 6th my daughter's school had its annual carnival. It was a
very hot day. After hanging out in the park for hours in the heat, my
daughter and I walked about 3 blocks home and climbed the 3 flights of
stairs to our apartment. I felt nauseous and the room was spinning like I
was drunk. I drank seltzer and didn't throw up. Since then I've become
increasingly aware of a mild dizzy sensation most of the time when
walking. I don't have it when I'm still unless I move my head around a
lot.

For a couple of years now I've had difficulty emptying my bowels and
bladder, resulting in frequent urinary tract infections. The usual fiber
type preparations for constipation just give me a stomach ache. Prunes
work, but even then it's an effort to expel the stool. It's like nothing
wants to come out. (I forgot to tell the neurologist this the first time I
saw him. He did not know about it before seeing the results or our
conversation yesterday.)

I will make an appointment with primary care doc, & also see the other
neurologist in Sept. Thank you both for your replies. I'll keep you
posted.

Linda



> I totally agree with DocSue (who ever doesn't?) You need another
opinion.
> How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where
I
> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
of
> that nonsence, I was told I needed a shrink to help me resolve some
latent
> trauma responsible for mimicking physical symptoms (conversion
disorder).
>
> Usually a spinal tap is done to check for murky fluid. Help me out
DocSue!!
> Mine was clear as distilled water meaning no infections. Plus I was
really
> too old (50) and who gets MS from an ear infection?
>
> Judith rafting down memory currents
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,
I'm raising my hand (I'm standing behind Judith) to getting a second opinion.
. ..MRI's can give a lot of false positives.
I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion, he
said
that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
said "take
these home and throw them away .. .you have a normal brain, there's NOTHING at
all
on here. So there ya go . ... I second the second opinion .. .Jeepers that
didn't come out
right .
Debs aka Mable



Subject: DN MRI results part II
Date: Thursday, July 8, 2010, 5:11 PM

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. My plan is to see my primary care doctor a week from Tuesday, show her the
MRI pix, tell her the neurology consult she referred me for finally came
through for September, tell her what the dr. who ordered the MRI said, and
see what she says. Another friend gave me the name of a neurologist. Maybe
I'll find out what his fee is & ask him to look at the pix too.

The idea of a spinal tap has freaked me out ever since the Exorcist was
excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
possessed by the devil so I'd never have to have a spinal tap. (I'm
Jewish.) I'm not good with medical stuff, and I gave birth with no
medication whatsoever, happily.

Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
list of questions, & one of them will be what would be his next step for
diagnosis.

Linda

> Agree, one test to help elucidate the diagnose of multiple sclerosis is a
> spinal tap....but I didn't want to heap on more tests without Linda
> taking
> a deep breath and choosing a path that works for her. I agree, there
> appears to be many "false" MS diagnoses on this board for vestibular
> disorders!
> Also, there may be newer, less invasive tests to rule in/out MS than a
> spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> might be
> in order to rule out viral/bacterial causes. I had a spinal tap at the
> beginning of my horrible journey to assess the MS question; it was also
> negative. The tap didn't hurt that much and it was all over in 15
> minutes. I
> just thought about all those women I delivered over the years that had
> epidurals placed in!
> docsue
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. No, I haven't.


> Linda,
>
> Have you ever had an OB/GYN examine your intimate parts to see if certain
> conditions can contribute to your bowel/bladder symptoms?
> docsue
>
>
> In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,
>
> I will be 49 on July 18.
>
> It was over a year ago that I started having pain in my hip joints. If I
> walked farther and faster than usual I took on a sort of lumbering
> side-to-side gait. My primary care doc said she usually liked to try
> something else before exposing people to X-rays, so she prescribed an
> anti-inflammatory. She was thinking arthritis at the time. When I'd
> completed the anti-inflammatory the pain went away & didn't come back for
> awhile. When it did come back I had the X-ray of my hips which showed no
> arthritis or anything else. Then she referred me to an audiologist. After
> VNG and complete audiological exam the audiologist recommended a
> neurological consult.
>
> In the time between then and now I started feeling very off-balance,
> never
> venturing far from something to lean on. I've fallen 2 or 3 times both at
> home and on the street. The hip joint pain has never come back as bad or
> constant as it was before, but I sometimes have it along with pain in my
> shoulders, which I think is caused by using my upper body to support
> myself in ways I wouldn't if I could balance normally.
>
> The first time I ever had a dizzy spell was months ago. I had just taken
> a
> long bath in very hot water. I used to love to do that. After I got out
> of
> the tub I felt dizzy & nauseous and then threw up. After that I don't
> take
> such hot baths anymore.
>
> Then, on June 6th my daughter's school had its annual carnival. It was a
> very hot day. After hanging out in the park for hours in the heat, my
> daughter and I walked about 3 blocks home and climbed the 3 flights of
> stairs to our apartment. I felt nauseous and the room was spinning like I
> was drunk. I drank seltzer and didn't throw up. Since then I've become
> increasingly aware of a mild dizzy sensation most of the time when
> walking. I don't have it when I'm still unless I move my head around a
> lot.
>
> For a couple of years now I've had difficulty emptying my bowels and
> bladder, resulting in frequent urinary tract infections. The usual fiber
> type preparations for constipation just give me a stomach ache. Prunes
> work, but even then it's an effort to expel the stool. It's like nothing
> wants to come out. (I forgot to tell the neurologist this the first time
> I
> saw him. He did not know about it before seeing the results or our
> conversation yesterday.)
>
> I will make an appointment with primary care doc, & also see the other
> neurologist in Sept. Thank you both for your replies. I'll keep you
> posted.
>
> Linda
>
>
>
>> I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
>> How old are you anyway? What brought all these symptoms on? I
>> started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
>> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
> of
>> that nonsence, I was told I needed a shrink to help me resolve some
> latent
>> trauma responsible for mimicking physical symptoms (conversion
> disorder).
>>
>> Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
>> Mine was clear as distilled water meaning no infections. Plus I was
> really
>> too old (50) and who gets MS from an ear infection?
>>
>> Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. "Second the second opinion" is almost as good as a "normal abnormality."



> Linda,
> I'm raising my hand (I'm standing behind Judith) to getting a second
> opinion.
> . ..MRI's can give a lot of false positives.
> I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
> Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion,
> he
> said
> that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
> said "take
> these home and throw them away .. .you have a normal brain, there's
> NOTHING at
> all
> on here. So there ya go . ... I second the second opinion .. .Jeepers that
> didn't come out
> right .
> Debs aka Mable
>
>
>
> Subject: DN MRI results part II
> Date: Thursday, July 8, 2010, 5:11 PM
>
> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Yes, Mable is rather brilliant with words. What a girl!!! Hi Mable. It's
me in ME


> "Second the second opinion" is almost as good as a "normal abnormality."
>
>
>
> > Linda,
> > I'm raising my hand (I'm standing behind Judith) to getting a second
> > opinion.
> > . ..MRI's can give a lot of false positives.
> > I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
> > Had MRI of head , was told I had an ????angioma, went to 2nd MRI
> opinion,
> > he
> > said
> > that's a "normal abnormality" . . .3rd neurologist looked at MRI films,
> he
> > said "take
> > these home and throw them away .. .you have a normal brain, there's
> > NOTHING at
> > all
> > on here. So there ya go . ... I second the second opinion .. .Jeepers
> that
> > didn't come out
> > right .
> > Debs aka Mable
> >
> >
> >
> > Subject: DN MRI results part II
> > Date: Thursday, July 8, 2010, 5:11 PM
> >
> > I went to see the neurologist today, & he said my results look like a
> mild
> > case of multiple sclerosis.
> >
> > He started out saying this is a "possibility" but then he sounded more
> and
> > more sure, then spent a lot of time reassuring me that it wouldn't be
> > disabling...(not that i don't feel somewhat disabled already), gave me
> his
> > home number, and the MRI pix, said make a list of questions & call him
> > Sunday night. (He is charging me nothing, by the way, & I paid nothing
> for
> > the MRI. He saw me as a favor to my boss.)
> >
> > I don't know what to think. I know he has a lot of experience looking at
> > MRI results.
> >
> > When I got home from that the neurology referral appointment I've been
> > waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> > primary care doc, the one who referred me for audiology & then neurology.
> >
> > Linda
> > _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Well, I know it's not fun, but next time you need a pap smear, you may
want to check it out. Sometimes a cystocele or a rectocele can contribute to
some of your bowel/bladder issues.
docsue


In a message dated 7/9/2010 7:44:50 P.M. Eastern Daylight Time,

No, I haven't.


> Linda,
>
> Have you ever had an OB/GYN examine your intimate parts to see if
certain
> conditions can contribute to your bowel/bladder symptoms?
> docsue
>
>
> In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,
>
> I will be 49 on July 18.
>
> It was over a year ago that I started having pain in my hip joints. If I
> walked farther and faster than usual I took on a sort of lumbering
> side-to-side gait. My primary care doc said she usually liked to try
> something else before exposing people to X-rays, so she prescribed an
> anti-inflammatory. She was thinking arthritis at the time. When I'd
> completed the anti-inflammatory the pain went away & didn't come back
for
> awhile. When it did come back I had the X-ray of my hips which showed no
> arthritis or anything else. Then she referred me to an audiologist.
After
> VNG and complete audiological exam the audiologist recommended a
> neurological consult.
>
> In the time between then and now I started feeling very off-balance,
> never
> venturing far from something to lean on. I've fallen 2 or 3 times both
at
> home and on the street. The hip joint pain has never come back as bad or
> constant as it was before, but I sometimes have it along with pain in
my
> shoulders, which I think is caused by using my upper body to support
> myself in ways I wouldn't if I could balance normally.
>
> The first time I ever had a dizzy spell was months ago. I had just taken
> a
> long bath in very hot water. I used to love to do that. After I got out
> of
> the tub I felt dizzy & nauseous and then threw up. After that I don't
> take
> such hot baths anymore.
>
> Then, on June 6th my daughter's school had its annual carnival. It was a
> very hot day. After hanging out in the park for hours in the heat, my
> daughter and I walked about 3 blocks home and climbed the 3 flights of
> stairs to our apartment. I felt nauseous and the room was spinning like
I
> was drunk. I drank seltzer and didn't throw up. Since then I've become
> increasingly aware of a mild dizzy sensation most of the time when
> walking. I don't have it when I'm still unless I move my head around a
> lot.
>
> For a couple of years now I've had difficulty emptying my bowels and
> bladder, resulting in frequent urinary tract infections. The usual
fiber
> type preparations for constipation just give me a stomach ache. Prunes
> work, but even then it's an effort to expel the stool. It's like nothing
> wants to come out. (I forgot to tell the neurologist this the first time
> I
> saw him. He did not know about it before seeing the results or our
> conversation yesterday.)
>
> I will make an appointment with primary care doc, & also see the other
> neurologist in Sept. Thank you both for your replies. I'll keep you
> posted.
>
> Linda
>
>
>
>> I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
>> How old are you anyway? What brought all these symptoms on? I
>> started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
>> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
> of
>> that nonsence, I was told I needed a shrink to help me resolve some
> latent
>> trauma responsible for mimicking physical symptoms (conversion
> disorder).
>>
>> Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
>> Mine was clear as distilled water meaning no infections. Plus I was
> really
>> too old (50) and who gets MS from an ear infection?
>>
>> Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,

Have you ever had an OB/GYN examine your intimate parts to see if certain
conditions can contribute to your bowel/bladder symptoms?
docsue


In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,

I will be 49 on July 18.

It was over a year ago that I started having pain in my hip joints. If I
walked farther and faster than usual I took on a sort of lumbering
side-to-side gait. My primary care doc said she usually liked to try
something else before exposing people to X-rays, so she prescribed an
anti-inflammatory. She was thinking arthritis at the time. When I'd
completed the anti-inflammatory the pain went away & didn't come back for
awhile. When it did come back I had the X-ray of my hips which showed no
arthritis or anything else. Then she referred me to an audiologist. After
VNG and complete audiological exam the audiologist recommended a
neurological consult.

In the time between then and now I started feeling very off-balance, never
venturing far from something to lean on. I've fallen 2 or 3 times both at
home and on the street. The hip joint pain has never come back as bad or
constant as it was before, but I sometimes have it along with pain in my
shoulders, which I think is caused by using my upper body to support
myself in ways I wouldn't if I could balance normally.

The first time I ever had a dizzy spell was months ago. I had just taken a
long bath in very hot water. I used to love to do that. After I got out of
the tub I felt dizzy & nauseous and then threw up. After that I don't take
such hot baths anymore.

Then, on June 6th my daughter's school had its annual carnival. It was a
very hot day. After hanging out in the park for hours in the heat, my
daughter and I walked about 3 blocks home and climbed the 3 flights of
stairs to our apartment. I felt nauseous and the room was spinning like I
was drunk. I drank seltzer and didn't throw up. Since then I've become
increasingly aware of a mild dizzy sensation most of the time when
walking. I don't have it when I'm still unless I move my head around a
lot.

For a couple of years now I've had difficulty emptying my bowels and
bladder, resulting in frequent urinary tract infections. The usual fiber
type preparations for constipation just give me a stomach ache. Prunes
work, but even then it's an effort to expel the stool. It's like nothing
wants to come out. (I forgot to tell the neurologist this the first time I
saw him. He did not know about it before seeing the results or our
conversation yesterday.)

I will make an appointment with primary care doc, & also see the other
neurologist in Sept. Thank you both for your replies. I'll keep you
posted.

Linda



> I totally agree with DocSue (who ever doesn't?) You need another
opinion.
> How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where
I
> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
of
> that nonsence, I was told I needed a shrink to help me resolve some
latent
> trauma responsible for mimicking physical symptoms (conversion
disorder).
>
> Usually a spinal tap is done to check for murky fluid. Help me out
DocSue!!
> Mine was clear as distilled water meaning no infections. Plus I was
really
> too old (50) and who gets MS from an ear infection?
>
> Judith rafting down memory currents
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,
I'm raising my hand (I'm standing behind Judith) to getting a second opinion.
. ..MRI's can give a lot of false positives.
I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion, he
said
that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
said "take
these home and throw them away .. .you have a normal brain, there's NOTHING at
all
on here. So there ya go . ... I second the second opinion .. .Jeepers that
didn't come out
right .
Debs aka Mable



Subject: DN MRI results part II
Date: Thursday, July 8, 2010, 5:11 PM

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. My plan is to see my primary care doctor a week from Tuesday, show her the
MRI pix, tell her the neurology consult she referred me for finally came
through for September, tell her what the dr. who ordered the MRI said, and
see what she says. Another friend gave me the name of a neurologist. Maybe
I'll find out what his fee is & ask him to look at the pix too.

The idea of a spinal tap has freaked me out ever since the Exorcist was
excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
possessed by the devil so I'd never have to have a spinal tap. (I'm
Jewish.) I'm not good with medical stuff, and I gave birth with no
medication whatsoever, happily.

Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
list of questions, & one of them will be what would be his next step for
diagnosis.

Linda

> Agree, one test to help elucidate the diagnose of multiple sclerosis is a
> spinal tap....but I didn't want to heap on more tests without Linda
> taking
> a deep breath and choosing a path that works for her. I agree, there
> appears to be many "false" MS diagnoses on this board for vestibular
> disorders!
> Also, there may be newer, less invasive tests to rule in/out MS than a
> spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> might be
> in order to rule out viral/bacterial causes. I had a spinal tap at the
> beginning of my horrible journey to assess the MS question; it was also
> negative. The tap didn't hurt that much and it was all over in 15
> minutes. I
> just thought about all those women I delivered over the years that had
> epidurals placed in!
> docsue
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. No, I haven't.


> Linda,
>
> Have you ever had an OB/GYN examine your intimate parts to see if certain
> conditions can contribute to your bowel/bladder symptoms?
> docsue
>
>
> In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,
>
> I will be 49 on July 18.
>
> It was over a year ago that I started having pain in my hip joints. If I
> walked farther and faster than usual I took on a sort of lumbering
> side-to-side gait. My primary care doc said she usually liked to try
> something else before exposing people to X-rays, so she prescribed an
> anti-inflammatory. She was thinking arthritis at the time. When I'd
> completed the anti-inflammatory the pain went away & didn't come back for
> awhile. When it did come back I had the X-ray of my hips which showed no
> arthritis or anything else. Then she referred me to an audiologist. After
> VNG and complete audiological exam the audiologist recommended a
> neurological consult.
>
> In the time between then and now I started feeling very off-balance,
> never
> venturing far from something to lean on. I've fallen 2 or 3 times both at
> home and on the street. The hip joint pain has never come back as bad or
> constant as it was before, but I sometimes have it along with pain in my
> shoulders, which I think is caused by using my upper body to support
> myself in ways I wouldn't if I could balance normally.
>
> The first time I ever had a dizzy spell was months ago. I had just taken
> a
> long bath in very hot water. I used to love to do that. After I got out
> of
> the tub I felt dizzy & nauseous and then threw up. After that I don't
> take
> such hot baths anymore.
>
> Then, on June 6th my daughter's school had its annual carnival. It was a
> very hot day. After hanging out in the park for hours in the heat, my
> daughter and I walked about 3 blocks home and climbed the 3 flights of
> stairs to our apartment. I felt nauseous and the room was spinning like I
> was drunk. I drank seltzer and didn't throw up. Since then I've become
> increasingly aware of a mild dizzy sensation most of the time when
> walking. I don't have it when I'm still unless I move my head around a
> lot.
>
> For a couple of years now I've had difficulty emptying my bowels and
> bladder, resulting in frequent urinary tract infections. The usual fiber
> type preparations for constipation just give me a stomach ache. Prunes
> work, but even then it's an effort to expel the stool. It's like nothing
> wants to come out. (I forgot to tell the neurologist this the first time
> I
> saw him. He did not know about it before seeing the results or our
> conversation yesterday.)
>
> I will make an appointment with primary care doc, & also see the other
> neurologist in Sept. Thank you both for your replies. I'll keep you
> posted.
>
> Linda
>
>
>
>> I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
>> How old are you anyway? What brought all these symptoms on? I
>> started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
>> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
> of
>> that nonsence, I was told I needed a shrink to help me resolve some
> latent
>> trauma responsible for mimicking physical symptoms (conversion
> disorder).
>>
>> Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
>> Mine was clear as distilled water meaning no infections. Plus I was
> really
>> too old (50) and who gets MS from an ear infection?
>>
>> Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. "Second the second opinion" is almost as good as a "normal abnormality."



> Linda,
> I'm raising my hand (I'm standing behind Judith) to getting a second
> opinion.
> . ..MRI's can give a lot of false positives.
> I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
> Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion,
> he
> said
> that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
> said "take
> these home and throw them away .. .you have a normal brain, there's
> NOTHING at
> all
> on here. So there ya go . ... I second the second opinion .. .Jeepers that
> didn't come out
> right .
> Debs aka Mable
>
>
>
> Subject: DN MRI results part II
> Date: Thursday, July 8, 2010, 5:11 PM
>
> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Yes, Mable is rather brilliant with words. What a girl!!! Hi Mable. It's
me in ME


> "Second the second opinion" is almost as good as a "normal abnormality."
>
>
>
> > Linda,
> > I'm raising my hand (I'm standing behind Judith) to getting a second
> > opinion.
> > . ..MRI's can give a lot of false positives.
> > I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
> > Had MRI of head , was told I had an ????angioma, went to 2nd MRI
> opinion,
> > he
> > said
> > that's a "normal abnormality" . . .3rd neurologist looked at MRI films,
> he
> > said "take
> > these home and throw them away .. .you have a normal brain, there's
> > NOTHING at
> > all
> > on here. So there ya go . ... I second the second opinion .. .Jeepers
> that
> > didn't come out
> > right .
> > Debs aka Mable
> >
> >
> >
> > Subject: DN MRI results part II
> > Date: Thursday, July 8, 2010, 5:11 PM
> >
> > I went to see the neurologist today, & he said my results look like a
> mild
> > case of multiple sclerosis.
> >
> > He started out saying this is a "possibility" but then he sounded more
> and
> > more sure, then spent a lot of time reassuring me that it wouldn't be
> > disabling...(not that i don't feel somewhat disabled already), gave me
> his
> > home number, and the MRI pix, said make a list of questions & call him
> > Sunday night. (He is charging me nothing, by the way, & I paid nothing
> for
> > the MRI. He saw me as a favor to my boss.)
> >
> > I don't know what to think. I know he has a lot of experience looking at
> > MRI results.
> >
> > When I got home from that the neurology referral appointment I've been
> > waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> > primary care doc, the one who referred me for audiology & then neurology.
> >
> > Linda
> > _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Well, I know it's not fun, but next time you need a pap smear, you may
want to check it out. Sometimes a cystocele or a rectocele can contribute to
some of your bowel/bladder issues.
docsue


In a message dated 7/9/2010 7:44:50 P.M. Eastern Daylight Time,

No, I haven't.


> Linda,
>
> Have you ever had an OB/GYN examine your intimate parts to see if
certain
> conditions can contribute to your bowel/bladder symptoms?
> docsue
>
>
> In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,
>
> I will be 49 on July 18.
>
> It was over a year ago that I started having pain in my hip joints. If I
> walked farther and faster than usual I took on a sort of lumbering
> side-to-side gait. My primary care doc said she usually liked to try
> something else before exposing people to X-rays, so she prescribed an
> anti-inflammatory. She was thinking arthritis at the time. When I'd
> completed the anti-inflammatory the pain went away & didn't come back
for
> awhile. When it did come back I had the X-ray of my hips which showed no
> arthritis or anything else. Then she referred me to an audiologist.
After
> VNG and complete audiological exam the audiologist recommended a
> neurological consult.
>
> In the time between then and now I started feeling very off-balance,
> never
> venturing far from something to lean on. I've fallen 2 or 3 times both
at
> home and on the street. The hip joint pain has never come back as bad or
> constant as it was before, but I sometimes have it along with pain in
my
> shoulders, which I think is caused by using my upper body to support
> myself in ways I wouldn't if I could balance normally.
>
> The first time I ever had a dizzy spell was months ago. I had just taken
> a
> long bath in very hot water. I used to love to do that. After I got out
> of
> the tub I felt dizzy & nauseous and then threw up. After that I don't
> take
> such hot baths anymore.
>
> Then, on June 6th my daughter's school had its annual carnival. It was a
> very hot day. After hanging out in the park for hours in the heat, my
> daughter and I walked about 3 blocks home and climbed the 3 flights of
> stairs to our apartment. I felt nauseous and the room was spinning like
I
> was drunk. I drank seltzer and didn't throw up. Since then I've become
> increasingly aware of a mild dizzy sensation most of the time when
> walking. I don't have it when I'm still unless I move my head around a
> lot.
>
> For a couple of years now I've had difficulty emptying my bowels and
> bladder, resulting in frequent urinary tract infections. The usual
fiber
> type preparations for constipation just give me a stomach ache. Prunes
> work, but even then it's an effort to expel the stool. It's like nothing
> wants to come out. (I forgot to tell the neurologist this the first time
> I
> saw him. He did not know about it before seeing the results or our
> conversation yesterday.)
>
> I will make an appointment with primary care doc, & also see the other
> neurologist in Sept. Thank you both for your replies. I'll keep you
> posted.
>
> Linda
>
>
>
>> I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
>> How old are you anyway? What brought all these symptoms on? I
>> started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
>> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
> of
>> that nonsence, I was told I needed a shrink to help me resolve some
> latent
>> trauma responsible for mimicking physical symptoms (conversion
> disorder).
>>
>> Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
>> Mine was clear as distilled water meaning no infections. Plus I was
> really
>> too old (50) and who gets MS from an ear infection?
>>
>> Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Well, I am Christian and I did not look forward to the spinal tap at all
too....but I was on IV valium at the time so I much didn't care! My ex was
Jewish and I learned a Yiddish saying....Oh Vay is mir! Sorry! Drs. can
be schwinehunds~!
docSue


In a message dated 7/9/2010 7:43:28 P.M. Eastern Daylight Time,

My plan is to see my primary care doctor a week from Tuesday, show her the
MRI pix, tell her the neurology consult she referred me for finally came
through for September, tell her what the dr. who ordered the MRI said, and
see what she says. Another friend gave me the name of a neurologist. Maybe
I'll find out what his fee is & ask him to look at the pix too.

The idea of a spinal tap has freaked me out ever since the Exorcist was
excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
possessed by the devil so I'd never have to have a spinal tap. (I'm
Jewish.) I'm not good with medical stuff, and I gave birth with no
medication whatsoever, happily.

Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
list of questions, & one of them will be what would be his next step for
diagnosis.

Linda

> Agree, one test to help elucidate the diagnose of multiple sclerosis is
a
> spinal tap....but I didn't want to heap on more tests without Linda
> taking
> a deep breath and choosing a path that works for her. I agree, there
> appears to be many "false" MS diagnoses on this board for vestibular
> disorders!
> Also, there may be newer, less invasive tests to rule in/out MS than a
> spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> might be
> in order to rule out viral/bacterial causes. I had a spinal tap at the
> beginning of my horrible journey to assess the MS question; it was also
> negative. The tap didn't hurt that much and it was all over in 15
> minutes. I
> just thought about all those women I delivered over the years that had
> epidurals placed in!
> docsue
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I would think it over, take a deep breath, and go see your primary care
doc. I would think that you need more than a MRI to CONFIRM multiple
sclerosis. Not saying you don't have it, but I would seek another opinion as to
the next step to confirm. Nice not to charge you..good guy that way
anyways.
docsue


In a message dated 7/8/2010 5:11:48 P.M. Eastern Daylight Time,

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I totally agree with DocSue (who ever doesn't?) You need another opinion.
How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where I
suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year of
that nonsence, I was told I needed a shrink to help me resolve some latent
trauma responsible for mimicking physical symptoms (conversion disorder).

Usually a spinal tap is done to check for murky fluid. Help me out DocSue!!
Mine was clear as distilled water meaning no infections. Plus I was really
too old (50) and who gets MS from an ear infection?

Judith rafting down memory currents


> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Gee Linda,

There are so many diagnoses that fit that description from lupus to yeast
infection to lyme disease and wheat allergies.

I have the same dizzies with or without getting ill at the stomach. Walking
hurts and is lumbering due to ataxia caused by headaches. I have fallen
numerous times in and out of the house. Aches all over are caused, in my
case, by the weird positions I find myself in due to struggling with
standing up. Heat and hot baths cause blood vessels to dialate causing
dizziness, headache, etc. as does exertion such as climbing stairs in the
heat when you're tired.

Some meds have blocked me right up with the same difficulties you
experience.

We will all pray for you as you struggle for a proper diagnosis. What I
suggest, if you are up to it, is try to research different possibilities on
your down and check out for yourself everything the doctor tells you. Many
doctors work much better with pro-active patients, and those who don't, you
should be checking up on anyway. Most of us here have been through many
years of terrible sx's and been down lots of dead ends and been on lots of
wild goose chases. My case was resolved after two years, but others were
longer, and others are still searching.

I hope you are able to keep positive and keep busy mind and body. We will
be looking forward to your up-dates and we are all on your side. Lots of
members have excellent resourses and experience, so if you have questions,
don't be afraid to post un-vestibular related topics. We have been through
many topics here from smoking cessation to hormones and beyond.

Love Judith


>
>
>
>
>
>
> > I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
> > How old are you anyway? What brought all these symptoms on? I started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
> of
> > that nonsence, I was told I needed a shrink to help me resolve some
> latent
> > trauma responsible for mimicking physical symptoms (conversion
> disorder).
> >
> > Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
> > Mine was clear as distilled water meaning no infections. Plus I was
> really
> > too old (50) and who gets MS from an ear infection?
> >
> > Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Judith,

Thanks again. I am doing research & my husband's cousin who is an MD has
been assisting me. I haven't told her about this yet, will tonight. I also
have a cousin (2nd cousin?) who is an MD, a psychiatrist.

What is your diagnosis?

L.


> Gee Linda,
>
> There are so many diagnoses that fit that description from lupus to yeast
> infection to lyme disease and wheat allergies.
>
> I have the same dizzies with or without getting ill at the stomach.
> Walking
> hurts and is lumbering due to ataxia caused by headaches. I have fallen
> numerous times in and out of the house. Aches all over are caused, in my
> case, by the weird positions I find myself in due to struggling with
> standing up. Heat and hot baths cause blood vessels to dialate causing
> dizziness, headache, etc. as does exertion such as climbing stairs in the
> heat when you're tired.
>
> Some meds have blocked me right up with the same difficulties you
> experience.
>
> We will all pray for you as you struggle for a proper diagnosis. What I
> suggest, if you are up to it, is try to research different possibilities
> on
> your down and check out for yourself everything the doctor tells you.
> Many
> doctors work much better with pro-active patients, and those who don't,
> you
> should be checking up on anyway. Most of us here have been through many
> years of terrible sx's and been down lots of dead ends and been on lots of
> wild goose chases. My case was resolved after two years, but others were
> longer, and others are still searching.
>
> I hope you are able to keep positive and keep busy mind and body. We will
> be looking forward to your up-dates and we are all on your side. Lots of
> members have excellent resourses and experience, so if you have questions,
> don't be afraid to post un-vestibular related topics. We have been
> through
> many topics here from smoking cessation to hormones and beyond.
>
> Love Judith
>
>
>>
>>
>>
>>
>>
>>
>> > I totally agree with DocSue (who ever doesn't?) You need another
>> opinion.
>> > How old are you anyway? What brought all these symptoms on? I
>> started
>> with an ear ache for which I took antibiotics. Just let's jump to where
>> I
>> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
>> of
>> > that nonsence, I was told I needed a shrink to help me resolve some
>> latent
>> > trauma responsible for mimicking physical symptoms (conversion
>> disorder).
>> >
>> > Usually a spinal tap is done to check for murky fluid. Help me out
>> DocSue!!
>> > Mine was clear as distilled water meaning no infections. Plus I was
>> really
>> > too old (50) and who gets MS from an ear infection?
>> >
>> > Judith rafting down memory currents
>> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Hi Linda, That's wonderful that you are in good hands. I'm sorry you have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have fallen
> > numerous times in and out of the house. Aches all over are caused, in my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What I
> > suggest, if you are up to it, is try to research different possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Agree, one test to help elucidate the diagnose of multiple sclerosis is a
spinal tap....but I didn't want to heap on more tests without Linda taking
a deep breath and choosing a path that works for her. I agree, there
appears to be many "false" MS diagnoses on this board for vestibular disorders!
Also, there may be newer, less invasive tests to rule in/out MS than a
spinal tap. Of course, if the MRI shows "inflammation", a spinal tap might be
in order to rule out viral/bacterial causes. I had a spinal tap at the
beginning of my horrible journey to assess the MS question; it was also
negative. The tap didn't hurt that much and it was all over in 15 minutes. I
just thought about all those women I delivered over the years that had
epidurals placed in!
docsue


In a message dated 7/9/2010 9:01:17 A.M. Eastern Daylight Time,

Hi Linda, That's wonderful that you are in good hands. I'm sorry you
have
to need it, of course. I have unilateral vestibular neurotonitus with 60%
loss of function in the right ear and MAV and/or transformed migraines.
This happened in 04 and the migraines kept escalating in frequency and
strength.

Judith


> Judith,
>
> Thanks again. I am doing research & my husband's cousin who is an MD has
> been assisting me. I haven't told her about this yet, will tonight. I
also
> have a cousin (2nd cousin?) who is an MD, a psychiatrist.
>
> What is your diagnosis?
>
> L.
>
>
> > Gee Linda,
> >
> > There are so many diagnoses that fit that description from lupus to
yeast
> > infection to lyme disease and wheat allergies.
> >
> > I have the same dizzies with or without getting ill at the stomach.
> > Walking
> > hurts and is lumbering due to ataxia caused by headaches. I have
fallen
> > numerous times in and out of the house. Aches all over are caused, in
my
> > case, by the weird positions I find myself in due to struggling with
> > standing up. Heat and hot baths cause blood vessels to dialate causing
> > dizziness, headache, etc. as does exertion such as climbing stairs in
> the
> > heat when you're tired.
> >
> > Some meds have blocked me right up with the same difficulties you
> > experience.
> >
> > We will all pray for you as you struggle for a proper diagnosis. What
I
> > suggest, if you are up to it, is try to research different
possibilities
> > on
> > your down and check out for yourself everything the doctor tells you.
> > Many
> > doctors work much better with pro-active patients, and those who don't,
> > you
> > should be checking up on anyway. Most of us here have been through
many
> > years of terrible sx's and been down lots of dead ends and been on lots
> of
> > wild goose chases. My case was resolved after two years, but others
were
> > longer, and others are still searching.
> >
> > I hope you are able to keep positive and keep busy mind and body. We
> will
> > be looking forward to your up-dates and we are all on your side. Lots
of
> > members have excellent resourses and experience, so if you have
> questions,
> > don't be afraid to post un-vestibular related topics. We have been
> > through
> > many topics here from smoking cessation to hormones and beyond.
> >
> > Love Judith
> >
> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> > I totally agree with DocSue (who ever doesn't?) You need another
> >> opinion.
> >> > How old are you anyway? What brought all these symptoms on? I
> >> started
> >> with an ear ache for which I took antibiotics. Just let's jump to
where
> >> I
> >> > suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
> >> year
> >> of
> >> > that nonsence, I was told I needed a shrink to help me resolve some
> >> latent
> >> > trauma responsible for mimicking physical symptoms (conversion
> >> disorder).
> >> >
> >> > Usually a spinal tap is done to check for murky fluid. Help me out
> >> DocSue!!
> >> > Mine was clear as distilled water meaning no infections. Plus I was
> >> really
> >> > too old (50) and who gets MS from an ear infection?
> >> >
> >> > Judith rafting down memory currents
> >> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,

Have you ever had an OB/GYN examine your intimate parts to see if certain
conditions can contribute to your bowel/bladder symptoms?
docsue


In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,

I will be 49 on July 18.

It was over a year ago that I started having pain in my hip joints. If I
walked farther and faster than usual I took on a sort of lumbering
side-to-side gait. My primary care doc said she usually liked to try
something else before exposing people to X-rays, so she prescribed an
anti-inflammatory. She was thinking arthritis at the time. When I'd
completed the anti-inflammatory the pain went away & didn't come back for
awhile. When it did come back I had the X-ray of my hips which showed no
arthritis or anything else. Then she referred me to an audiologist. After
VNG and complete audiological exam the audiologist recommended a
neurological consult.

In the time between then and now I started feeling very off-balance, never
venturing far from something to lean on. I've fallen 2 or 3 times both at
home and on the street. The hip joint pain has never come back as bad or
constant as it was before, but I sometimes have it along with pain in my
shoulders, which I think is caused by using my upper body to support
myself in ways I wouldn't if I could balance normally.

The first time I ever had a dizzy spell was months ago. I had just taken a
long bath in very hot water. I used to love to do that. After I got out of
the tub I felt dizzy & nauseous and then threw up. After that I don't take
such hot baths anymore.

Then, on June 6th my daughter's school had its annual carnival. It was a
very hot day. After hanging out in the park for hours in the heat, my
daughter and I walked about 3 blocks home and climbed the 3 flights of
stairs to our apartment. I felt nauseous and the room was spinning like I
was drunk. I drank seltzer and didn't throw up. Since then I've become
increasingly aware of a mild dizzy sensation most of the time when
walking. I don't have it when I'm still unless I move my head around a
lot.

For a couple of years now I've had difficulty emptying my bowels and
bladder, resulting in frequent urinary tract infections. The usual fiber
type preparations for constipation just give me a stomach ache. Prunes
work, but even then it's an effort to expel the stool. It's like nothing
wants to come out. (I forgot to tell the neurologist this the first time I
saw him. He did not know about it before seeing the results or our
conversation yesterday.)

I will make an appointment with primary care doc, & also see the other
neurologist in Sept. Thank you both for your replies. I'll keep you
posted.

Linda



> I totally agree with DocSue (who ever doesn't?) You need another
opinion.
> How old are you anyway? What brought all these symptoms on? I started
with an ear ache for which I took antibiotics. Just let's jump to where
I
> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a year
of
> that nonsence, I was told I needed a shrink to help me resolve some
latent
> trauma responsible for mimicking physical symptoms (conversion
disorder).
>
> Usually a spinal tap is done to check for murky fluid. Help me out
DocSue!!
> Mine was clear as distilled water meaning no infections. Plus I was
really
> too old (50) and who gets MS from an ear infection?
>
> Judith rafting down memory currents
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Linda,
I'm raising my hand (I'm standing behind Judith) to getting a second opinion.
. ..MRI's can give a lot of false positives.
I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion, he
said
that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
said "take
these home and throw them away .. .you have a normal brain, there's NOTHING at
all
on here. So there ya go . ... I second the second opinion .. .Jeepers that
didn't come out
right .
Debs aka Mable



Subject: DN MRI results part II
Date: Thursday, July 8, 2010, 5:11 PM

I went to see the neurologist today, & he said my results look like a mild
case of multiple sclerosis.

He started out saying this is a "possibility" but then he sounded more and
more sure, then spent a lot of time reassuring me that it wouldn't be
disabling...(not that i don't feel somewhat disabled already), gave me his
home number, and the MRI pix, said make a list of questions & call him
Sunday night. (He is charging me nothing, by the way, & I paid nothing for
the MRI. He saw me as a favor to my boss.)

I don't know what to think. I know he has a lot of experience looking at
MRI results.

When I got home from that the neurology referral appointment I've been
waiting for was in the mailbox. Sept. 28! I can also show the pix to my
primary care doc, the one who referred me for audiology & then neurology.

Linda
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. My plan is to see my primary care doctor a week from Tuesday, show her the
MRI pix, tell her the neurology consult she referred me for finally came
through for September, tell her what the dr. who ordered the MRI said, and
see what she says. Another friend gave me the name of a neurologist. Maybe
I'll find out what his fee is & ask him to look at the pix too.

The idea of a spinal tap has freaked me out ever since the Exorcist was
excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
possessed by the devil so I'd never have to have a spinal tap. (I'm
Jewish.) I'm not good with medical stuff, and I gave birth with no
medication whatsoever, happily.

Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
list of questions, & one of them will be what would be his next step for
diagnosis.

Linda

> Agree, one test to help elucidate the diagnose of multiple sclerosis is a
> spinal tap....but I didn't want to heap on more tests without Linda
> taking
> a deep breath and choosing a path that works for her. I agree, there
> appears to be many "false" MS diagnoses on this board for vestibular
> disorders!
> Also, there may be newer, less invasive tests to rule in/out MS than a
> spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> might be
> in order to rule out viral/bacterial causes. I had a spinal tap at the
> beginning of my horrible journey to assess the MS question; it was also
> negative. The tap didn't hurt that much and it was all over in 15
> minutes. I
> just thought about all those women I delivered over the years that had
> epidurals placed in!
> docsue
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. No, I haven't.


> Linda,
>
> Have you ever had an OB/GYN examine your intimate parts to see if certain
> conditions can contribute to your bowel/bladder symptoms?
> docsue
>
>
> In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,
>
> I will be 49 on July 18.
>
> It was over a year ago that I started having pain in my hip joints. If I
> walked farther and faster than usual I took on a sort of lumbering
> side-to-side gait. My primary care doc said she usually liked to try
> something else before exposing people to X-rays, so she prescribed an
> anti-inflammatory. She was thinking arthritis at the time. When I'd
> completed the anti-inflammatory the pain went away & didn't come back for
> awhile. When it did come back I had the X-ray of my hips which showed no
> arthritis or anything else. Then she referred me to an audiologist. After
> VNG and complete audiological exam the audiologist recommended a
> neurological consult.
>
> In the time between then and now I started feeling very off-balance,
> never
> venturing far from something to lean on. I've fallen 2 or 3 times both at
> home and on the street. The hip joint pain has never come back as bad or
> constant as it was before, but I sometimes have it along with pain in my
> shoulders, which I think is caused by using my upper body to support
> myself in ways I wouldn't if I could balance normally.
>
> The first time I ever had a dizzy spell was months ago. I had just taken
> a
> long bath in very hot water. I used to love to do that. After I got out
> of
> the tub I felt dizzy & nauseous and then threw up. After that I don't
> take
> such hot baths anymore.
>
> Then, on June 6th my daughter's school had its annual carnival. It was a
> very hot day. After hanging out in the park for hours in the heat, my
> daughter and I walked about 3 blocks home and climbed the 3 flights of
> stairs to our apartment. I felt nauseous and the room was spinning like I
> was drunk. I drank seltzer and didn't throw up. Since then I've become
> increasingly aware of a mild dizzy sensation most of the time when
> walking. I don't have it when I'm still unless I move my head around a
> lot.
>
> For a couple of years now I've had difficulty emptying my bowels and
> bladder, resulting in frequent urinary tract infections. The usual fiber
> type preparations for constipation just give me a stomach ache. Prunes
> work, but even then it's an effort to expel the stool. It's like nothing
> wants to come out. (I forgot to tell the neurologist this the first time
> I
> saw him. He did not know about it before seeing the results or our
> conversation yesterday.)
>
> I will make an appointment with primary care doc, & also see the other
> neurologist in Sept. Thank you both for your replies. I'll keep you
> posted.
>
> Linda
>
>
>
>> I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
>> How old are you anyway? What brought all these symptoms on? I
>> started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
>> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
> of
>> that nonsence, I was told I needed a shrink to help me resolve some
> latent
>> trauma responsible for mimicking physical symptoms (conversion
> disorder).
>>
>> Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
>> Mine was clear as distilled water meaning no infections. Plus I was
> really
>> too old (50) and who gets MS from an ear infection?
>>
>> Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. "Second the second opinion" is almost as good as a "normal abnormality."



> Linda,
> I'm raising my hand (I'm standing behind Judith) to getting a second
> opinion.
> . ..MRI's can give a lot of false positives.
> I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
> Had MRI of head , was told I had an ????angioma, went to 2nd MRI opinion,
> he
> said
> that's a "normal abnormality" . . .3rd neurologist looked at MRI films, he
> said "take
> these home and throw them away .. .you have a normal brain, there's
> NOTHING at
> all
> on here. So there ya go . ... I second the second opinion .. .Jeepers that
> didn't come out
> right .
> Debs aka Mable
>
>
>
> Subject: DN MRI results part II
> Date: Thursday, July 8, 2010, 5:11 PM
>
> I went to see the neurologist today, & he said my results look like a mild
> case of multiple sclerosis.
>
> He started out saying this is a "possibility" but then he sounded more and
> more sure, then spent a lot of time reassuring me that it wouldn't be
> disabling...(not that i don't feel somewhat disabled already), gave me his
> home number, and the MRI pix, said make a list of questions & call him
> Sunday night. (He is charging me nothing, by the way, & I paid nothing for
> the MRI. He saw me as a favor to my boss.)
>
> I don't know what to think. I know he has a lot of experience looking at
> MRI results.
>
> When I got home from that the neurology referral appointment I've been
> waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> primary care doc, the one who referred me for audiology & then neurology.
>
> Linda
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Yes, Mable is rather brilliant with words. What a girl!!! Hi Mable. It's
me in ME


> "Second the second opinion" is almost as good as a "normal abnormality."
>
>
>
> > Linda,
> > I'm raising my hand (I'm standing behind Judith) to getting a second
> > opinion.
> > . ..MRI's can give a lot of false positives.
> > I was told I had an adrenal gland tumor 2nd MRI, No adrenal gland tumor.
> > Had MRI of head , was told I had an ????angioma, went to 2nd MRI
> opinion,
> > he
> > said
> > that's a "normal abnormality" . . .3rd neurologist looked at MRI films,
> he
> > said "take
> > these home and throw them away .. .you have a normal brain, there's
> > NOTHING at
> > all
> > on here. So there ya go . ... I second the second opinion .. .Jeepers
> that
> > didn't come out
> > right .
> > Debs aka Mable
> >
> >
> >
> > Subject: DN MRI results part II
> > Date: Thursday, July 8, 2010, 5:11 PM
> >
> > I went to see the neurologist today, & he said my results look like a
> mild
> > case of multiple sclerosis.
> >
> > He started out saying this is a "possibility" but then he sounded more
> and
> > more sure, then spent a lot of time reassuring me that it wouldn't be
> > disabling...(not that i don't feel somewhat disabled already), gave me
> his
> > home number, and the MRI pix, said make a list of questions & call him
> > Sunday night. (He is charging me nothing, by the way, & I paid nothing
> for
> > the MRI. He saw me as a favor to my boss.)
> >
> > I don't know what to think. I know he has a lot of experience looking at
> > MRI results.
> >
> > When I got home from that the neurology referral appointment I've been
> > waiting for was in the mailbox. Sept. 28! I can also show the pix to my
> > primary care doc, the one who referred me for audiology & then neurology.
> >
> > Linda
> > _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Well, I know it's not fun, but next time you need a pap smear, you may
want to check it out. Sometimes a cystocele or a rectocele can contribute to
some of your bowel/bladder issues.
docsue


In a message dated 7/9/2010 7:44:50 P.M. Eastern Daylight Time,

No, I haven't.


> Linda,
>
> Have you ever had an OB/GYN examine your intimate parts to see if
certain
> conditions can contribute to your bowel/bladder symptoms?
> docsue
>
>
> In a message dated 7/9/2010 7:55:11 A.M. Eastern Daylight Time,
>
> I will be 49 on July 18.
>
> It was over a year ago that I started having pain in my hip joints. If I
> walked farther and faster than usual I took on a sort of lumbering
> side-to-side gait. My primary care doc said she usually liked to try
> something else before exposing people to X-rays, so she prescribed an
> anti-inflammatory. She was thinking arthritis at the time. When I'd
> completed the anti-inflammatory the pain went away & didn't come back
for
> awhile. When it did come back I had the X-ray of my hips which showed no
> arthritis or anything else. Then she referred me to an audiologist.
After
> VNG and complete audiological exam the audiologist recommended a
> neurological consult.
>
> In the time between then and now I started feeling very off-balance,
> never
> venturing far from something to lean on. I've fallen 2 or 3 times both
at
> home and on the street. The hip joint pain has never come back as bad or
> constant as it was before, but I sometimes have it along with pain in
my
> shoulders, which I think is caused by using my upper body to support
> myself in ways I wouldn't if I could balance normally.
>
> The first time I ever had a dizzy spell was months ago. I had just taken
> a
> long bath in very hot water. I used to love to do that. After I got out
> of
> the tub I felt dizzy & nauseous and then threw up. After that I don't
> take
> such hot baths anymore.
>
> Then, on June 6th my daughter's school had its annual carnival. It was a
> very hot day. After hanging out in the park for hours in the heat, my
> daughter and I walked about 3 blocks home and climbed the 3 flights of
> stairs to our apartment. I felt nauseous and the room was spinning like
I
> was drunk. I drank seltzer and didn't throw up. Since then I've become
> increasingly aware of a mild dizzy sensation most of the time when
> walking. I don't have it when I'm still unless I move my head around a
> lot.
>
> For a couple of years now I've had difficulty emptying my bowels and
> bladder, resulting in frequent urinary tract infections. The usual
fiber
> type preparations for constipation just give me a stomach ache. Prunes
> work, but even then it's an effort to expel the stool. It's like nothing
> wants to come out. (I forgot to tell the neurologist this the first time
> I
> saw him. He did not know about it before seeing the results or our
> conversation yesterday.)
>
> I will make an appointment with primary care doc, & also see the other
> neurologist in Sept. Thank you both for your replies. I'll keep you
> posted.
>
> Linda
>
>
>
>> I totally agree with DocSue (who ever doesn't?) You need another
> opinion.
>> How old are you anyway? What brought all these symptoms on? I
>> started
> with an ear ache for which I took antibiotics. Just let's jump to where
> I
>> suddenly bounced off walls, panic, MRI, diagnosis MS!!!!!!! After a
>> year
> of
>> that nonsence, I was told I needed a shrink to help me resolve some
> latent
>> trauma responsible for mimicking physical symptoms (conversion
> disorder).
>>
>> Usually a spinal tap is done to check for murky fluid. Help me out
> DocSue!!
>> Mine was clear as distilled water meaning no infections. Plus I was
> really
>> too old (50) and who gets MS from an ear infection?
>>
>> Judith rafting down memory currents
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Well, I am Christian and I did not look forward to the spinal tap at all
too....but I was on IV valium at the time so I much didn't care! My ex was
Jewish and I learned a Yiddish saying....Oh Vay is mir! Sorry! Drs. can
be schwinehunds~!
docSue


In a message dated 7/9/2010 7:43:28 P.M. Eastern Daylight Time,

My plan is to see my primary care doctor a week from Tuesday, show her the
MRI pix, tell her the neurology consult she referred me for finally came
through for September, tell her what the dr. who ordered the MRI said, and
see what she says. Another friend gave me the name of a neurologist. Maybe
I'll find out what his fee is & ask him to look at the pix too.

The idea of a spinal tap has freaked me out ever since the Exorcist was
excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
possessed by the devil so I'd never have to have a spinal tap. (I'm
Jewish.) I'm not good with medical stuff, and I gave birth with no
medication whatsoever, happily.

Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
list of questions, & one of them will be what would be his next step for
diagnosis.

Linda

> Agree, one test to help elucidate the diagnose of multiple sclerosis is
a
> spinal tap....but I didn't want to heap on more tests without Linda
> taking
> a deep breath and choosing a path that works for her. I agree, there
> appears to be many "false" MS diagnoses on this board for vestibular
> disorders!
> Also, there may be newer, less invasive tests to rule in/out MS than a
> spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> might be
> in order to rule out viral/bacterial causes. I had a spinal tap at the
> beginning of my horrible journey to assess the MS question; it was also
> negative. The tap didn't hurt that much and it was all over in 15
> minutes. I
> just thought about all those women I delivered over the years that had
> epidurals placed in!
> docsue
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I'm a Christian and a Conservative and I have loads of Jewish friends.
Heck, the doctor who did my spinal tap was Jewish. He was great. I did it
in my right mind with no meds. It wasn't too bad, but I wouldn't want
another one. Don't know Yiddish, but I saw Fiddler on the Roof with Zero
Mostel. That must count for something. We were sitting in the loge and he
sang right up to us.

Judith calling it a day (whatever "it" is)


> Well, I am Christian and I did not look forward to the spinal tap at all
> too....but I was on IV valium at the time so I much didn't care! My ex
> was
> Jewish and I learned a Yiddish saying....Oh Vay is mir! Sorry! Drs. can
> be schwinehunds~!
> docSue
>
>
> In a message dated 7/9/2010 7:43:28 P.M. Eastern Daylight Time,
>
> My plan is to see my primary care doctor a week from Tuesday, show her the
> MRI pix, tell her the neurology consult she referred me for finally came
> through for September, tell her what the dr. who ordered the MRI said, and
> see what she says. Another friend gave me the name of a neurologist. Maybe
> I'll find out what his fee is & ask him to look at the pix too.
>
> The idea of a spinal tap has freaked me out ever since the Exorcist was
> excerpted in my mother's COSMOPOLITAN magazine. I vowed never to get
> possessed by the devil so I'd never have to have a spinal tap. (I'm
> Jewish.) I'm not good with medical stuff, and I gave birth with no
> medication whatsoever, happily.
>
> Meanwhile I'm taking Dr. Irving up on his instruction to call him with a
> list of questions, & one of them will be what would be his next step for
> diagnosis.
>
> Linda
>
> > Agree, one test to help elucidate the diagnose of multiple sclerosis is
> a
> > spinal tap....but I didn't want to heap on more tests without Linda
> > taking
> > a deep breath and choosing a path that works for her. I agree, there
> > appears to be many "false" MS diagnoses on this board for vestibular
> > disorders!
> > Also, there may be newer, less invasive tests to rule in/out MS than a
> > spinal tap. Of course, if the MRI shows "inflammation", a spinal tap
> > might be
> > in order to rule out viral/bacterial causes. I had a spinal tap at the
> > beginning of my horrible journey to assess the MS question; it was
> also
> > negative. The tap didn't hurt that much and it was all over in 15
> > minutes. I
> > just thought about all those women I delivered over the years that had
> > epidurals placed in!
> > docsue
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.