Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks, good luck to you and will be anxious to hear the results.
Karen G/Omaha

> Date: Tue, 26 Oct 2010 13:32:40 -0700
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> Karen hi, I read in newspaper here in europe today that Botox has been
> approved in US
> as treatment for migraine. The same happend some time ago in UK. I am going
to
> try it and report back:)
> hugs
>
> bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:
>
>
> From: karen guilfoyle <>
> Subject: DN Botox injections for migraines?
> To: "dizzinews" <>
> Date: Tuesday, October 26, 2010, 5:57 PM
>
>
> Has anyone tried Botox injections for chronic migraines? My pain dr is
trying
> to get approval from Aetna for them.
> Karen G/Omaha
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks, good luck to you and will be anxious to hear the results.
Karen G/Omaha

> Date: Tue, 26 Oct 2010 13:32:40 -0700
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> Karen hi, I read in newspaper here in europe today that Botox has been
> approved in US
> as treatment for migraine. The same happend some time ago in UK. I am going
to
> try it and report back:)
> hugs
>
> bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:
>
>
> From: karen guilfoyle <>
> Subject: DN Botox injections for migraines?
> To: "dizzinews" <>
> Date: Tuesday, October 26, 2010, 5:57 PM
>
>
> Has anyone tried Botox injections for chronic migraines? My pain dr is
trying
> to get approval from Aetna for them.
> Karen G/Omaha
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Pat, Do you have classic migraines or vestibular associated migraine.
Judith

On Tue, Oct 26, 2010 at 6:51 PM, PE <> wrote:

> I get them every 6 weeks from my neuro and they work well. There are days
> when I still get prodrome and aura, but minimal pain, and there are a few
> days when I normally would have a migraine that I have been pleasantly
> surprised that I didn't get one. The shots also seem to help ease the
> severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks, good luck to you and will be anxious to hear the results.
Karen G/Omaha

> Date: Tue, 26 Oct 2010 13:32:40 -0700
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> Karen hi, I read in newspaper here in europe today that Botox has been
> approved in US
> as treatment for migraine. The same happend some time ago in UK. I am going
to
> try it and report back:)
> hugs
>
> bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:
>
>
> From: karen guilfoyle <>
> Subject: DN Botox injections for migraines?
> To: "dizzinews" <>
> Date: Tuesday, October 26, 2010, 5:57 PM
>
>
> Has anyone tried Botox injections for chronic migraines? My pain dr is
trying
> to get approval from Aetna for them.
> Karen G/Omaha
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Pat, Do you have classic migraines or vestibular associated migraine.
Judith

On Tue, Oct 26, 2010 at 6:51 PM, PE <> wrote:

> I get them every 6 weeks from my neuro and they work well. There are days
> when I still get prodrome and aura, but minimal pain, and there are a few
> days when I normally would have a migraine that I have been pleasantly
> surprised that I didn't get one. The shots also seem to help ease the
> severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> Pat, Do you have classic migraines or vestibular associated migraine.
> Judith
>
Judith,

I'm sure you're looking for a short answer, but I feel the need to
explain my answer. I have migraine disease, which I've had since
childhood, but was never formally diagnosed until after the dizzies
hit. The vestibular symptoms, at least in my case, resulted from 30+
years of having migraines that were never properly diagnosed and
treated. In my twenties and 30s, I'd get what I thought were sinus
infections-lots of pressure, nasal congestion, some pain, light
sensitivity, but not the textbook migraine symptoms. My doc would shine
a light up my nose and tell me my sinuses didn't light up the way they
should and he'd give me a prescription for an antibiotic. A few days
later, my nose would open up, the pressure and the pain would be gone,
and I thought the meds worked. Plus, it always seemed to happen the
week before my period showed up.

To be honest with you, I don't think the classification of vestibular
associated migraine vs classic migraine matters, since, the goal, at
least in my case, is to treat the migraine, then go on to VRT to get
the balance mechanism as caught up as possible. I stay as active as
possible, and although I still have bad days, I'm not in the same place
I was 10 years ago when the "fun" first started. From what I've read,
migraine is considered to be a genetic disease. I remember reading
recently about a discovery of a gene related to migraine. I know I saw
my mother having bad headaches she thought were sinus headaches-there
were plenty of mornings when she'd be retching at the sink. Check out
the site My Migraine Connection

It has a lot of great information about migraine, treatments, etc. One
of the site's people- Teri Robert, wrote a book Living Well with
Migraine Disease and Headaches. I have a copy. If you would like to
borrow it, I'd be happy to loan it to you. Just send me your address
off-list.


Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks, good luck to you and will be anxious to hear the results.
Karen G/Omaha

> Date: Tue, 26 Oct 2010 13:32:40 -0700
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> Karen hi, I read in newspaper here in europe today that Botox has been
> approved in US
> as treatment for migraine. The same happend some time ago in UK. I am going
to
> try it and report back:)
> hugs
>
> bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:
>
>
> From: karen guilfoyle <>
> Subject: DN Botox injections for migraines?
> To: "dizzinews" <>
> Date: Tuesday, October 26, 2010, 5:57 PM
>
>
> Has anyone tried Botox injections for chronic migraines? My pain dr is
trying
> to get approval from Aetna for them.
> Karen G/Omaha
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Pat, Do you have classic migraines or vestibular associated migraine.
Judith

On Tue, Oct 26, 2010 at 6:51 PM, PE <> wrote:

> I get them every 6 weeks from my neuro and they work well. There are days
> when I still get prodrome and aura, but minimal pain, and there are a few
> days when I normally would have a migraine that I have been pleasantly
> surprised that I didn't get one. The shots also seem to help ease the
> severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> Pat, Do you have classic migraines or vestibular associated migraine.
> Judith
>
Judith,

I'm sure you're looking for a short answer, but I feel the need to
explain my answer. I have migraine disease, which I've had since
childhood, but was never formally diagnosed until after the dizzies
hit. The vestibular symptoms, at least in my case, resulted from 30+
years of having migraines that were never properly diagnosed and
treated. In my twenties and 30s, I'd get what I thought were sinus
infections-lots of pressure, nasal congestion, some pain, light
sensitivity, but not the textbook migraine symptoms. My doc would shine
a light up my nose and tell me my sinuses didn't light up the way they
should and he'd give me a prescription for an antibiotic. A few days
later, my nose would open up, the pressure and the pain would be gone,
and I thought the meds worked. Plus, it always seemed to happen the
week before my period showed up.

To be honest with you, I don't think the classification of vestibular
associated migraine vs classic migraine matters, since, the goal, at
least in my case, is to treat the migraine, then go on to VRT to get
the balance mechanism as caught up as possible. I stay as active as
possible, and although I still have bad days, I'm not in the same place
I was 10 years ago when the "fun" first started. From what I've read,
migraine is considered to be a genetic disease. I remember reading
recently about a discovery of a gene related to migraine. I know I saw
my mother having bad headaches she thought were sinus headaches-there
were plenty of mornings when she'd be retching at the sink. Check out
the site My Migraine Connection

It has a lot of great information about migraine, treatments, etc. One
of the site's people- Teri Robert, wrote a book Living Well with
Migraine Disease and Headaches. I have a copy. If you would like to
borrow it, I'd be happy to loan it to you. Just send me your address
off-list.


Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> That is great news. I had heard about it then my dr. suggested it and there
> were a couple of segments about
> it on Good Morning America last week. How many injections does he do and
> where?
To be honest with you, I never counted how many. The syringes, and
needles, :) are very small, like insulin syringes. The injections
themselves feel more like little insect stings. He injects at the
bottom of both my eyebrows and in between my eyebrows and part of my
forehead. Since my migraines are mainly on my left side, he goes on the
left side of my head and scalp, and down the left side of my neck.
That's it. I'm in and out in about 10-15 minutes. It takes about a
week or so to see results, which is normal. Side effects- minimal-I've
only had some very mild injection site tenderness-more if I touch the
spots, and the sites are visible for a day or so-like the pores are big,
no real big bumps or anything.

I had botox with my last neurologist, as well as this guy. My last
neurologist just learned how to do it when I saw her, and I noticed that
as time went on, the injections became less effective. I also had a lot
more injection site pain and tenderness. I'm not having the same issues
with this doctor.

Good luck, and let us know how you do.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks, good luck to you and will be anxious to hear the results.
Karen G/Omaha

> Date: Tue, 26 Oct 2010 13:32:40 -0700
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> Karen hi, I read in newspaper here in europe today that Botox has been
> approved in US
> as treatment for migraine. The same happend some time ago in UK. I am going
to
> try it and report back:)
> hugs
>
> bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:
>
>
> From: karen guilfoyle <>
> Subject: DN Botox injections for migraines?
> To: "dizzinews" <>
> Date: Tuesday, October 26, 2010, 5:57 PM
>
>
> Has anyone tried Botox injections for chronic migraines? My pain dr is
trying
> to get approval from Aetna for them.
> Karen G/Omaha
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Pat, Do you have classic migraines or vestibular associated migraine.
Judith

On Tue, Oct 26, 2010 at 6:51 PM, PE <> wrote:

> I get them every 6 weeks from my neuro and they work well. There are days
> when I still get prodrome and aura, but minimal pain, and there are a few
> days when I normally would have a migraine that I have been pleasantly
> surprised that I didn't get one. The shots also seem to help ease the
> severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> Pat, Do you have classic migraines or vestibular associated migraine.
> Judith
>
Judith,

I'm sure you're looking for a short answer, but I feel the need to
explain my answer. I have migraine disease, which I've had since
childhood, but was never formally diagnosed until after the dizzies
hit. The vestibular symptoms, at least in my case, resulted from 30+
years of having migraines that were never properly diagnosed and
treated. In my twenties and 30s, I'd get what I thought were sinus
infections-lots of pressure, nasal congestion, some pain, light
sensitivity, but not the textbook migraine symptoms. My doc would shine
a light up my nose and tell me my sinuses didn't light up the way they
should and he'd give me a prescription for an antibiotic. A few days
later, my nose would open up, the pressure and the pain would be gone,
and I thought the meds worked. Plus, it always seemed to happen the
week before my period showed up.

To be honest with you, I don't think the classification of vestibular
associated migraine vs classic migraine matters, since, the goal, at
least in my case, is to treat the migraine, then go on to VRT to get
the balance mechanism as caught up as possible. I stay as active as
possible, and although I still have bad days, I'm not in the same place
I was 10 years ago when the "fun" first started. From what I've read,
migraine is considered to be a genetic disease. I remember reading
recently about a discovery of a gene related to migraine. I know I saw
my mother having bad headaches she thought were sinus headaches-there
were plenty of mornings when she'd be retching at the sink. Check out
the site My Migraine Connection

It has a lot of great information about migraine, treatments, etc. One
of the site's people- Teri Robert, wrote a book Living Well with
Migraine Disease and Headaches. I have a copy. If you would like to
borrow it, I'd be happy to loan it to you. Just send me your address
off-list.


Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> That is great news. I had heard about it then my dr. suggested it and there
> were a couple of segments about
> it on Good Morning America last week. How many injections does he do and
> where?
To be honest with you, I never counted how many. The syringes, and
needles, :) are very small, like insulin syringes. The injections
themselves feel more like little insect stings. He injects at the
bottom of both my eyebrows and in between my eyebrows and part of my
forehead. Since my migraines are mainly on my left side, he goes on the
left side of my head and scalp, and down the left side of my neck.
That's it. I'm in and out in about 10-15 minutes. It takes about a
week or so to see results, which is normal. Side effects- minimal-I've
only had some very mild injection site tenderness-more if I touch the
spots, and the sites are visible for a day or so-like the pores are big,
no real big bumps or anything.

I had botox with my last neurologist, as well as this guy. My last
neurologist just learned how to do it when I saw her, and I noticed that
as time went on, the injections became less effective. I also had a lot
more injection site pain and tenderness. I'm not having the same issues
with this doctor.

Good luck, and let us know how you do.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks for the info, very helpful to know more what to expect. So glad it has
helped you.
Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:48:16 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> > That is great news. I had heard about it then my dr. suggested it and
there
> > were a couple of segments about
> > it on Good Morning America last week. How many injections does he do and
> > where?
> To be honest with you, I never counted how many. The syringes, and
> needles, :) are very small, like insulin syringes. The injections
> themselves feel more like little insect stings. He injects at the
> bottom of both my eyebrows and in between my eyebrows and part of my
> forehead. Since my migraines are mainly on my left side, he goes on the
> left side of my head and scalp, and down the left side of my neck.
> That's it. I'm in and out in about 10-15 minutes. It takes about a
> week or so to see results, which is normal. Side effects- minimal-I've
> only had some very mild injection site tenderness-more if I touch the
> spots, and the sites are visible for a day or so-like the pores are big,
> no real big bumps or anything.
>
> I had botox with my last neurologist, as well as this guy. My last
> neurologist just learned how to do it when I saw her, and I noticed that
> as time went on, the injections became less effective. I also had a lot
> more injection site pain and tenderness. I'm not having the same issues
> with this doctor.
>
> Good luck, and let us know how you do.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks, good luck to you and will be anxious to hear the results.
Karen G/Omaha

> Date: Tue, 26 Oct 2010 13:32:40 -0700
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> Karen hi, I read in newspaper here in europe today that Botox has been
> approved in US
> as treatment for migraine. The same happend some time ago in UK. I am going
to
> try it and report back:)
> hugs
>
> bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:
>
>
> From: karen guilfoyle <>
> Subject: DN Botox injections for migraines?
> To: "dizzinews" <>
> Date: Tuesday, October 26, 2010, 5:57 PM
>
>
> Has anyone tried Botox injections for chronic migraines? My pain dr is
trying
> to get approval from Aetna for them.
> Karen G/Omaha
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Pat, Do you have classic migraines or vestibular associated migraine.
Judith

On Tue, Oct 26, 2010 at 6:51 PM, PE <> wrote:

> I get them every 6 weeks from my neuro and they work well. There are days
> when I still get prodrome and aura, but minimal pain, and there are a few
> days when I normally would have a migraine that I have been pleasantly
> surprised that I didn't get one. The shots also seem to help ease the
> severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> Pat, Do you have classic migraines or vestibular associated migraine.
> Judith
>
Judith,

I'm sure you're looking for a short answer, but I feel the need to
explain my answer. I have migraine disease, which I've had since
childhood, but was never formally diagnosed until after the dizzies
hit. The vestibular symptoms, at least in my case, resulted from 30+
years of having migraines that were never properly diagnosed and
treated. In my twenties and 30s, I'd get what I thought were sinus
infections-lots of pressure, nasal congestion, some pain, light
sensitivity, but not the textbook migraine symptoms. My doc would shine
a light up my nose and tell me my sinuses didn't light up the way they
should and he'd give me a prescription for an antibiotic. A few days
later, my nose would open up, the pressure and the pain would be gone,
and I thought the meds worked. Plus, it always seemed to happen the
week before my period showed up.

To be honest with you, I don't think the classification of vestibular
associated migraine vs classic migraine matters, since, the goal, at
least in my case, is to treat the migraine, then go on to VRT to get
the balance mechanism as caught up as possible. I stay as active as
possible, and although I still have bad days, I'm not in the same place
I was 10 years ago when the "fun" first started. From what I've read,
migraine is considered to be a genetic disease. I remember reading
recently about a discovery of a gene related to migraine. I know I saw
my mother having bad headaches she thought were sinus headaches-there
were plenty of mornings when she'd be retching at the sink. Check out
the site My Migraine Connection

It has a lot of great information about migraine, treatments, etc. One
of the site's people- Teri Robert, wrote a book Living Well with
Migraine Disease and Headaches. I have a copy. If you would like to
borrow it, I'd be happy to loan it to you. Just send me your address
off-list.


Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> That is great news. I had heard about it then my dr. suggested it and there
> were a couple of segments about
> it on Good Morning America last week. How many injections does he do and
> where?
To be honest with you, I never counted how many. The syringes, and
needles, :) are very small, like insulin syringes. The injections
themselves feel more like little insect stings. He injects at the
bottom of both my eyebrows and in between my eyebrows and part of my
forehead. Since my migraines are mainly on my left side, he goes on the
left side of my head and scalp, and down the left side of my neck.
That's it. I'm in and out in about 10-15 minutes. It takes about a
week or so to see results, which is normal. Side effects- minimal-I've
only had some very mild injection site tenderness-more if I touch the
spots, and the sites are visible for a day or so-like the pores are big,
no real big bumps or anything.

I had botox with my last neurologist, as well as this guy. My last
neurologist just learned how to do it when I saw her, and I noticed that
as time went on, the injections became less effective. I also had a lot
more injection site pain and tenderness. I'm not having the same issues
with this doctor.

Good luck, and let us know how you do.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks for the info, very helpful to know more what to expect. So glad it has
helped you.
Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:48:16 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> > That is great news. I had heard about it then my dr. suggested it and
there
> > were a couple of segments about
> > it on Good Morning America last week. How many injections does he do and
> > where?
> To be honest with you, I never counted how many. The syringes, and
> needles, :) are very small, like insulin syringes. The injections
> themselves feel more like little insect stings. He injects at the
> bottom of both my eyebrows and in between my eyebrows and part of my
> forehead. Since my migraines are mainly on my left side, he goes on the
> left side of my head and scalp, and down the left side of my neck.
> That's it. I'm in and out in about 10-15 minutes. It takes about a
> week or so to see results, which is normal. Side effects- minimal-I've
> only had some very mild injection site tenderness-more if I touch the
> spots, and the sites are visible for a day or so-like the pores are big,
> no real big bumps or anything.
>
> I had botox with my last neurologist, as well as this guy. My last
> neurologist just learned how to do it when I saw her, and I noticed that
> as time went on, the injections became less effective. I also had a lot
> more injection site pain and tenderness. I'm not having the same issues
> with this doctor.
>
> Good luck, and let us know how you do.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Please remove me from your email list.

Thank you,
Holly

On Oct 27, 2010 9:25 AM, "karen guilfoyle" <> wrote:

Thanks for the info, very helpful to know more what to expect. So glad it
has
helped you.
Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:48:16 -0400

> From:
> To:
> Subject: Re: DN Botox injections f...

> On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> > That is great news. I had heard about it then my...
> 'message sent to'

> Dizzinews mailing list
>
> http://lists.samurai.com/mailman/listinfo/d...
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks, good luck to you and will be anxious to hear the results.
Karen G/Omaha

> Date: Tue, 26 Oct 2010 13:32:40 -0700
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> Karen hi, I read in newspaper here in europe today that Botox has been
> approved in US
> as treatment for migraine. The same happend some time ago in UK. I am going
to
> try it and report back:)
> hugs
>
> bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:
>
>
> From: karen guilfoyle <>
> Subject: DN Botox injections for migraines?
> To: "dizzinews" <>
> Date: Tuesday, October 26, 2010, 5:57 PM
>
>
> Has anyone tried Botox injections for chronic migraines? My pain dr is
trying
> to get approval from Aetna for them.
> Karen G/Omaha
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Pat, Do you have classic migraines or vestibular associated migraine.
Judith

On Tue, Oct 26, 2010 at 6:51 PM, PE <> wrote:

> I get them every 6 weeks from my neuro and they work well. There are days
> when I still get prodrome and aura, but minimal pain, and there are a few
> days when I normally would have a migraine that I have been pleasantly
> surprised that I didn't get one. The shots also seem to help ease the
> severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> Pat, Do you have classic migraines or vestibular associated migraine.
> Judith
>
Judith,

I'm sure you're looking for a short answer, but I feel the need to
explain my answer. I have migraine disease, which I've had since
childhood, but was never formally diagnosed until after the dizzies
hit. The vestibular symptoms, at least in my case, resulted from 30+
years of having migraines that were never properly diagnosed and
treated. In my twenties and 30s, I'd get what I thought were sinus
infections-lots of pressure, nasal congestion, some pain, light
sensitivity, but not the textbook migraine symptoms. My doc would shine
a light up my nose and tell me my sinuses didn't light up the way they
should and he'd give me a prescription for an antibiotic. A few days
later, my nose would open up, the pressure and the pain would be gone,
and I thought the meds worked. Plus, it always seemed to happen the
week before my period showed up.

To be honest with you, I don't think the classification of vestibular
associated migraine vs classic migraine matters, since, the goal, at
least in my case, is to treat the migraine, then go on to VRT to get
the balance mechanism as caught up as possible. I stay as active as
possible, and although I still have bad days, I'm not in the same place
I was 10 years ago when the "fun" first started. From what I've read,
migraine is considered to be a genetic disease. I remember reading
recently about a discovery of a gene related to migraine. I know I saw
my mother having bad headaches she thought were sinus headaches-there
were plenty of mornings when she'd be retching at the sink. Check out
the site My Migraine Connection

It has a lot of great information about migraine, treatments, etc. One
of the site's people- Teri Robert, wrote a book Living Well with
Migraine Disease and Headaches. I have a copy. If you would like to
borrow it, I'd be happy to loan it to you. Just send me your address
off-list.


Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> That is great news. I had heard about it then my dr. suggested it and there
> were a couple of segments about
> it on Good Morning America last week. How many injections does he do and
> where?
To be honest with you, I never counted how many. The syringes, and
needles, :) are very small, like insulin syringes. The injections
themselves feel more like little insect stings. He injects at the
bottom of both my eyebrows and in between my eyebrows and part of my
forehead. Since my migraines are mainly on my left side, he goes on the
left side of my head and scalp, and down the left side of my neck.
That's it. I'm in and out in about 10-15 minutes. It takes about a
week or so to see results, which is normal. Side effects- minimal-I've
only had some very mild injection site tenderness-more if I touch the
spots, and the sites are visible for a day or so-like the pores are big,
no real big bumps or anything.

I had botox with my last neurologist, as well as this guy. My last
neurologist just learned how to do it when I saw her, and I noticed that
as time went on, the injections became less effective. I also had a lot
more injection site pain and tenderness. I'm not having the same issues
with this doctor.

Good luck, and let us know how you do.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks for the info, very helpful to know more what to expect. So glad it has
helped you.
Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:48:16 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> > That is great news. I had heard about it then my dr. suggested it and
there
> > were a couple of segments about
> > it on Good Morning America last week. How many injections does he do and
> > where?
> To be honest with you, I never counted how many. The syringes, and
> needles, :) are very small, like insulin syringes. The injections
> themselves feel more like little insect stings. He injects at the
> bottom of both my eyebrows and in between my eyebrows and part of my
> forehead. Since my migraines are mainly on my left side, he goes on the
> left side of my head and scalp, and down the left side of my neck.
> That's it. I'm in and out in about 10-15 minutes. It takes about a
> week or so to see results, which is normal. Side effects- minimal-I've
> only had some very mild injection site tenderness-more if I touch the
> spots, and the sites are visible for a day or so-like the pores are big,
> no real big bumps or anything.
>
> I had botox with my last neurologist, as well as this guy. My last
> neurologist just learned how to do it when I saw her, and I noticed that
> as time went on, the injections became less effective. I also had a lot
> more injection site pain and tenderness. I'm not having the same issues
> with this doctor.
>
> Good luck, and let us know how you do.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Please remove me from your email list.

Thank you,
Holly

On Oct 27, 2010 9:25 AM, "karen guilfoyle" <> wrote:

Thanks for the info, very helpful to know more what to expect. So glad it
has
helped you.
Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:48:16 -0400

> From:
> To:
> Subject: Re: DN Botox injections f...

> On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> > That is great news. I had heard about it then my...
> 'message sent to'

> Dizzinews mailing list
>
> http://lists.samurai.com/mailman/listinfo/d...
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Wow Pat, I have had 3 sinus surgeries and on countless rounds of antibiotics
and prednisone since my 20's(am now 56). I have taken so much prednisone that
I now have osteoporosis- it really helped break the migraine cycle most
recently.
Now, seeing your history it makes me wonder if I, too, was misdiagnosed all
these years. Headaches were just a normal part of life for me, sometimes so
bad I had to stay home and in bed but most of the time I just kept working,
etc. Of course took tons of OTC meds and some Rx which caused rebound
headaches which I just learned about this year.
My Mom always had "sinus" headaches.
I did not notice particular triggers like different lights, movies, motion,
or symptoms of nausea, feeling like my brain was "shorting out". But I didn't
know anything about migraines then either. I was really surprised to read that
stuffy nose is a symptom of migraine and that you don't always have an "aura"
or even a headache to be having an actual migraine. My Mom has now been
diagnosed with migraines too after having optical symptoms.

My headaches did become magnified 100x with the vestibular issues, especially
after the 2nd side "went down". Then I learned particular motions,
head-turning, looking up and down would bring on the worst headaches and then
really started noticing cause/effect of bright lights, motion sickness
and still learning new triggers. Now the migraines have taken on a whole new
life of their own and really causing me more problems than the dizziness and
balance problems- although such a treat to have both as you know. Being on the
computer being a big trigger for me. So I should get off the computer now but
thanks again, your information was really helpful, I will check out the
website.

Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:34:05 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> > Pat, Do you have classic migraines or vestibular associated migraine.
> > Judith
> >
> Judith,
>
> I'm sure you're looking for a short answer, but I feel the need to
> explain my answer. I have migraine disease, which I've had since
> childhood, but was never formally diagnosed until after the dizzies
> hit. The vestibular symptoms, at least in my case, resulted from 30+
> years of having migraines that were never properly diagnosed and
> treated. In my twenties and 30s, I'd get what I thought were sinus
> infections-lots of pressure, nasal congestion, some pain, light
> sensitivity, but not the textbook migraine symptoms. My doc would shine
> a light up my nose and tell me my sinuses didn't light up the way they
> should and he'd give me a prescription for an antibiotic. A few days
> later, my nose would open up, the pressure and the pain would be gone,
> and I thought the meds worked. Plus, it always seemed to happen the
> week before my period showed up.
>
> To be honest with you, I don't think the classification of vestibular
> associated migraine vs classic migraine matters, since, the goal, at
> least in my case, is to treat the migraine, then go on to VRT to get
> the balance mechanism as caught up as possible. I stay as active as
> possible, and although I still have bad days, I'm not in the same place
> I was 10 years ago when the "fun" first started. From what I've read,
> migraine is considered to be a genetic disease. I remember reading
> recently about a discovery of a gene related to migraine. I know I saw
> my mother having bad headaches she thought were sinus headaches-there
> were plenty of mornings when she'd be retching at the sink. Check out
> the site My Migraine Connection
>
> It has a lot of great information about migraine, treatments, etc. One
> of the site's people- Teri Robert, wrote a book Living Well with
> Migraine Disease and Headaches. I have a copy. If you would like to
> borrow it, I'd be happy to loan it to you. Just send me your address
> off-list.
>
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks, good luck to you and will be anxious to hear the results.
Karen G/Omaha

> Date: Tue, 26 Oct 2010 13:32:40 -0700
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> Karen hi, I read in newspaper here in europe today that Botox has been
> approved in US
> as treatment for migraine. The same happend some time ago in UK. I am going
to
> try it and report back:)
> hugs
>
> bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:
>
>
> From: karen guilfoyle <>
> Subject: DN Botox injections for migraines?
> To: "dizzinews" <>
> Date: Tuesday, October 26, 2010, 5:57 PM
>
>
> Has anyone tried Botox injections for chronic migraines? My pain dr is
trying
> to get approval from Aetna for them.
> Karen G/Omaha
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Pat, Do you have classic migraines or vestibular associated migraine.
Judith

On Tue, Oct 26, 2010 at 6:51 PM, PE <> wrote:

> I get them every 6 weeks from my neuro and they work well. There are days
> when I still get prodrome and aura, but minimal pain, and there are a few
> days when I normally would have a migraine that I have been pleasantly
> surprised that I didn't get one. The shots also seem to help ease the
> severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> Pat, Do you have classic migraines or vestibular associated migraine.
> Judith
>
Judith,

I'm sure you're looking for a short answer, but I feel the need to
explain my answer. I have migraine disease, which I've had since
childhood, but was never formally diagnosed until after the dizzies
hit. The vestibular symptoms, at least in my case, resulted from 30+
years of having migraines that were never properly diagnosed and
treated. In my twenties and 30s, I'd get what I thought were sinus
infections-lots of pressure, nasal congestion, some pain, light
sensitivity, but not the textbook migraine symptoms. My doc would shine
a light up my nose and tell me my sinuses didn't light up the way they
should and he'd give me a prescription for an antibiotic. A few days
later, my nose would open up, the pressure and the pain would be gone,
and I thought the meds worked. Plus, it always seemed to happen the
week before my period showed up.

To be honest with you, I don't think the classification of vestibular
associated migraine vs classic migraine matters, since, the goal, at
least in my case, is to treat the migraine, then go on to VRT to get
the balance mechanism as caught up as possible. I stay as active as
possible, and although I still have bad days, I'm not in the same place
I was 10 years ago when the "fun" first started. From what I've read,
migraine is considered to be a genetic disease. I remember reading
recently about a discovery of a gene related to migraine. I know I saw
my mother having bad headaches she thought were sinus headaches-there
were plenty of mornings when she'd be retching at the sink. Check out
the site My Migraine Connection

It has a lot of great information about migraine, treatments, etc. One
of the site's people- Teri Robert, wrote a book Living Well with
Migraine Disease and Headaches. I have a copy. If you would like to
borrow it, I'd be happy to loan it to you. Just send me your address
off-list.


Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> That is great news. I had heard about it then my dr. suggested it and there
> were a couple of segments about
> it on Good Morning America last week. How many injections does he do and
> where?
To be honest with you, I never counted how many. The syringes, and
needles, :) are very small, like insulin syringes. The injections
themselves feel more like little insect stings. He injects at the
bottom of both my eyebrows and in between my eyebrows and part of my
forehead. Since my migraines are mainly on my left side, he goes on the
left side of my head and scalp, and down the left side of my neck.
That's it. I'm in and out in about 10-15 minutes. It takes about a
week or so to see results, which is normal. Side effects- minimal-I've
only had some very mild injection site tenderness-more if I touch the
spots, and the sites are visible for a day or so-like the pores are big,
no real big bumps or anything.

I had botox with my last neurologist, as well as this guy. My last
neurologist just learned how to do it when I saw her, and I noticed that
as time went on, the injections became less effective. I also had a lot
more injection site pain and tenderness. I'm not having the same issues
with this doctor.

Good luck, and let us know how you do.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks for the info, very helpful to know more what to expect. So glad it has
helped you.
Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:48:16 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> > That is great news. I had heard about it then my dr. suggested it and
there
> > were a couple of segments about
> > it on Good Morning America last week. How many injections does he do and
> > where?
> To be honest with you, I never counted how many. The syringes, and
> needles, :) are very small, like insulin syringes. The injections
> themselves feel more like little insect stings. He injects at the
> bottom of both my eyebrows and in between my eyebrows and part of my
> forehead. Since my migraines are mainly on my left side, he goes on the
> left side of my head and scalp, and down the left side of my neck.
> That's it. I'm in and out in about 10-15 minutes. It takes about a
> week or so to see results, which is normal. Side effects- minimal-I've
> only had some very mild injection site tenderness-more if I touch the
> spots, and the sites are visible for a day or so-like the pores are big,
> no real big bumps or anything.
>
> I had botox with my last neurologist, as well as this guy. My last
> neurologist just learned how to do it when I saw her, and I noticed that
> as time went on, the injections became less effective. I also had a lot
> more injection site pain and tenderness. I'm not having the same issues
> with this doctor.
>
> Good luck, and let us know how you do.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Please remove me from your email list.

Thank you,
Holly

On Oct 27, 2010 9:25 AM, "karen guilfoyle" <> wrote:

Thanks for the info, very helpful to know more what to expect. So glad it
has
helped you.
Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:48:16 -0400

> From:
> To:
> Subject: Re: DN Botox injections f...

> On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> > That is great news. I had heard about it then my...
> 'message sent to'

> Dizzinews mailing list
>
> http://lists.samurai.com/mailman/listinfo/d...
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Wow Pat, I have had 3 sinus surgeries and on countless rounds of antibiotics
and prednisone since my 20's(am now 56). I have taken so much prednisone that
I now have osteoporosis- it really helped break the migraine cycle most
recently.
Now, seeing your history it makes me wonder if I, too, was misdiagnosed all
these years. Headaches were just a normal part of life for me, sometimes so
bad I had to stay home and in bed but most of the time I just kept working,
etc. Of course took tons of OTC meds and some Rx which caused rebound
headaches which I just learned about this year.
My Mom always had "sinus" headaches.
I did not notice particular triggers like different lights, movies, motion,
or symptoms of nausea, feeling like my brain was "shorting out". But I didn't
know anything about migraines then either. I was really surprised to read that
stuffy nose is a symptom of migraine and that you don't always have an "aura"
or even a headache to be having an actual migraine. My Mom has now been
diagnosed with migraines too after having optical symptoms.

My headaches did become magnified 100x with the vestibular issues, especially
after the 2nd side "went down". Then I learned particular motions,
head-turning, looking up and down would bring on the worst headaches and then
really started noticing cause/effect of bright lights, motion sickness
and still learning new triggers. Now the migraines have taken on a whole new
life of their own and really causing me more problems than the dizziness and
balance problems- although such a treat to have both as you know. Being on the
computer being a big trigger for me. So I should get off the computer now but
thanks again, your information was really helpful, I will check out the
website.

Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:34:05 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> > Pat, Do you have classic migraines or vestibular associated migraine.
> > Judith
> >
> Judith,
>
> I'm sure you're looking for a short answer, but I feel the need to
> explain my answer. I have migraine disease, which I've had since
> childhood, but was never formally diagnosed until after the dizzies
> hit. The vestibular symptoms, at least in my case, resulted from 30+
> years of having migraines that were never properly diagnosed and
> treated. In my twenties and 30s, I'd get what I thought were sinus
> infections-lots of pressure, nasal congestion, some pain, light
> sensitivity, but not the textbook migraine symptoms. My doc would shine
> a light up my nose and tell me my sinuses didn't light up the way they
> should and he'd give me a prescription for an antibiotic. A few days
> later, my nose would open up, the pressure and the pain would be gone,
> and I thought the meds worked. Plus, it always seemed to happen the
> week before my period showed up.
>
> To be honest with you, I don't think the classification of vestibular
> associated migraine vs classic migraine matters, since, the goal, at
> least in my case, is to treat the migraine, then go on to VRT to get
> the balance mechanism as caught up as possible. I stay as active as
> possible, and although I still have bad days, I'm not in the same place
> I was 10 years ago when the "fun" first started. From what I've read,
> migraine is considered to be a genetic disease. I remember reading
> recently about a discovery of a gene related to migraine. I know I saw
> my mother having bad headaches she thought were sinus headaches-there
> were plenty of mornings when she'd be retching at the sink. Check out
> the site My Migraine Connection
>
> It has a lot of great information about migraine, treatments, etc. One
> of the site's people- Teri Robert, wrote a book Living Well with
> Migraine Disease and Headaches. I have a copy. If you would like to
> borrow it, I'd be happy to loan it to you. Just send me your address
> off-list.
>
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I really need to be removed from this email list. Let me know what else I
need to do to make that happen.

Thank you,
Holly



On Wed, Oct 27, 2010 at 9:45 AM, karen guilfoyle <>wrote:

> Wow Pat, I have had 3 sinus surgeries and on countless rounds of
> antibiotics
> and prednisone since my 20's(am now 56). I have taken so much prednisone
> that
> I now have osteoporosis- it really helped break the migraine cycle most
> recently.
> Now, seeing your history it makes me wonder if I, too, was misdiagnosed
> all
> these years. Headaches were just a normal part of life for me, sometimes so
> bad I had to stay home and in bed but most of the time I just kept working,
> etc. Of course took tons of OTC meds and some Rx which caused rebound
> headaches which I just learned about this year.
> My Mom always had "sinus" headaches.
> I did not notice particular triggers like different lights, movies,
> motion,
> or symptoms of nausea, feeling like my brain was "shorting out". But I
> didn't
> know anything about migraines then either. I was really surprised to read
> that
> stuffy nose is a symptom of migraine and that you don't always have an
> "aura"
> or even a headache to be having an actual migraine. My Mom has now been
> diagnosed with migraines too after having optical symptoms.
>
> My headaches did become magnified 100x with the vestibular issues,
> especially
> after the 2nd side "went down". Then I learned particular motions,
> head-turning, looking up and down would bring on the worst headaches and
> then
> really started noticing cause/effect of bright lights, motion sickness
> and still learning new triggers. Now the migraines have taken on a whole
> new
> life of their own and really causing me more problems than the dizziness
> and
> balance problems- although such a treat to have both as you know. Being on
> the
> computer being a big trigger for me. So I should get off the computer now
> but
> thanks again, your information was really helpful, I will check out the
> website.
>
> Karen G/Omaha
>
> > Date: Wed, 27 Oct 2010 08:34:05 -0400
> > From:
> > To:
> > Subject: Re: DN Botox injections for migraines?
> >
> > On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> > > Pat, Do you have classic migraines or vestibular associated migraine.
> > > Judith
> > >
> > Judith,
> >
> > I'm sure you're looking for a short answer, but I feel the need to
> > explain my answer. I have migraine disease, which I've had since
> > childhood, but was never formally diagnosed until after the dizzies
> > hit. The vestibular symptoms, at least in my case, resulted from 30+
> > years of having migraines that were never properly diagnosed and
> > treated. In my twenties and 30s, I'd get what I thought were sinus
> > infections-lots of pressure, nasal congestion, some pain, light
> > sensitivity, but not the textbook migraine symptoms. My doc would shine
> > a light up my nose and tell me my sinuses didn't light up the way they
> > should and he'd give me a prescription for an antibiotic. A few days
> > later, my nose would open up, the pressure and the pain would be gone,
> > and I thought the meds worked. Plus, it always seemed to happen the
> > week before my period showed up.
> >
> > To be honest with you, I don't think the classification of vestibular
> > associated migraine vs classic migraine matters, since, the goal, at
> > least in my case, is to treat the migraine, then go on to VRT to get
> > the balance mechanism as caught up as possible. I stay as active as
> > possible, and although I still have bad days, I'm not in the same place
> > I was 10 years ago when the "fun" first started. From what I've read,
> > migraine is considered to be a genetic disease. I remember reading
> > recently about a discovery of a gene related to migraine. I know I saw
> > my mother having bad headaches she thought were sinus headaches-there
> > were plenty of mornings when she'd be retching at the sink. Check out
> > the site My Migraine Connection
> > <
> http://www.healthcentral.com/migraine/understanding-migraine.html?ic=4018>
> > It has a lot of great information about migraine, treatments, etc. One
> > of the site's people- Teri Robert, wrote a book Living Well with
> > Migraine Disease and Headaches. I have a copy. If you would like to
> > borrow it, I'd be happy to loan it to you. Just send me your address
> > off-list.
> >
> >
> > Pat
> > _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.

Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha



> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Karen hi, I read in newspaper here in europe today that Botox has been
approved in US
as treatment for migraine. The same happend some time ago in UK. I am going to
try it and report back:)
hugs

bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:


From: karen guilfoyle <>
Subject: DN Botox injections for migraines?
To: "dizzinews" <>
Date: Tuesday, October 26, 2010, 5:57 PM


Has anyone tried Botox injections for chronic migraines? My pain dr is trying
to get approval from Aetna for them.
Karen G/Omaha
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I get them every 6 weeks from my neuro and they work well. There are
days when I still get prodrome and aura, but minimal pain, and there are
a few days when I normally would have a migraine that I have been
pleasantly surprised that I didn't get one. The shots also seem to help
ease the severity.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. That is great news. I had heard about it then my dr. suggested it and there
were a couple of segments about
it on Good Morning America last week. How many injections does he do and
where? I just need to get these
migraines under control so I can do my VRT, I am rapidly regressing in the
balance area since the migraines
have taken on a life of their own. Neurofeedback helps me but very sloooooow
process, have been having
treatments once or twice a week since April. Surprisingly Aetna pays for it
100% after my co-pay.
I am also very susceptible to rebound headaches so can't take migraine meds
more than 2x week anyway.


Karen G/Omaha

> Date: Tue, 26 Oct 2010 18:51:38 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> I get them every 6 weeks from my neuro and they work well. There are
> days when I still get prodrome and aura, but minimal pain, and there are
> a few days when I normally would have a migraine that I have been
> pleasantly surprised that I didn't get one. The shots also seem to help
> ease the severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks, good luck to you and will be anxious to hear the results.
Karen G/Omaha

> Date: Tue, 26 Oct 2010 13:32:40 -0700
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> Karen hi, I read in newspaper here in europe today that Botox has been
> approved in US
> as treatment for migraine. The same happend some time ago in UK. I am going
to
> try it and report back:)
> hugs
>
> bb--- On Tue, 10/26/10, karen guilfoyle <> wrote:
>
>
> From: karen guilfoyle <>
> Subject: DN Botox injections for migraines?
> To: "dizzinews" <>
> Date: Tuesday, October 26, 2010, 5:57 PM
>
>
> Has anyone tried Botox injections for chronic migraines? My pain dr is
trying
> to get approval from Aetna for them.
> Karen G/Omaha
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Pat, Do you have classic migraines or vestibular associated migraine.
Judith

On Tue, Oct 26, 2010 at 6:51 PM, PE <> wrote:

> I get them every 6 weeks from my neuro and they work well. There are days
> when I still get prodrome and aura, but minimal pain, and there are a few
> days when I normally would have a migraine that I have been pleasantly
> surprised that I didn't get one. The shots also seem to help ease the
> severity.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> Pat, Do you have classic migraines or vestibular associated migraine.
> Judith
>
Judith,

I'm sure you're looking for a short answer, but I feel the need to
explain my answer. I have migraine disease, which I've had since
childhood, but was never formally diagnosed until after the dizzies
hit. The vestibular symptoms, at least in my case, resulted from 30+
years of having migraines that were never properly diagnosed and
treated. In my twenties and 30s, I'd get what I thought were sinus
infections-lots of pressure, nasal congestion, some pain, light
sensitivity, but not the textbook migraine symptoms. My doc would shine
a light up my nose and tell me my sinuses didn't light up the way they
should and he'd give me a prescription for an antibiotic. A few days
later, my nose would open up, the pressure and the pain would be gone,
and I thought the meds worked. Plus, it always seemed to happen the
week before my period showed up.

To be honest with you, I don't think the classification of vestibular
associated migraine vs classic migraine matters, since, the goal, at
least in my case, is to treat the migraine, then go on to VRT to get
the balance mechanism as caught up as possible. I stay as active as
possible, and although I still have bad days, I'm not in the same place
I was 10 years ago when the "fun" first started. From what I've read,
migraine is considered to be a genetic disease. I remember reading
recently about a discovery of a gene related to migraine. I know I saw
my mother having bad headaches she thought were sinus headaches-there
were plenty of mornings when she'd be retching at the sink. Check out
the site My Migraine Connection

It has a lot of great information about migraine, treatments, etc. One
of the site's people- Teri Robert, wrote a book Living Well with
Migraine Disease and Headaches. I have a copy. If you would like to
borrow it, I'd be happy to loan it to you. Just send me your address
off-list.


Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> That is great news. I had heard about it then my dr. suggested it and there
> were a couple of segments about
> it on Good Morning America last week. How many injections does he do and
> where?
To be honest with you, I never counted how many. The syringes, and
needles, :) are very small, like insulin syringes. The injections
themselves feel more like little insect stings. He injects at the
bottom of both my eyebrows and in between my eyebrows and part of my
forehead. Since my migraines are mainly on my left side, he goes on the
left side of my head and scalp, and down the left side of my neck.
That's it. I'm in and out in about 10-15 minutes. It takes about a
week or so to see results, which is normal. Side effects- minimal-I've
only had some very mild injection site tenderness-more if I touch the
spots, and the sites are visible for a day or so-like the pores are big,
no real big bumps or anything.

I had botox with my last neurologist, as well as this guy. My last
neurologist just learned how to do it when I saw her, and I noticed that
as time went on, the injections became less effective. I also had a lot
more injection site pain and tenderness. I'm not having the same issues
with this doctor.

Good luck, and let us know how you do.

Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Thanks for the info, very helpful to know more what to expect. So glad it has
helped you.
Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:48:16 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> > That is great news. I had heard about it then my dr. suggested it and
there
> > were a couple of segments about
> > it on Good Morning America last week. How many injections does he do and
> > where?
> To be honest with you, I never counted how many. The syringes, and
> needles, :) are very small, like insulin syringes. The injections
> themselves feel more like little insect stings. He injects at the
> bottom of both my eyebrows and in between my eyebrows and part of my
> forehead. Since my migraines are mainly on my left side, he goes on the
> left side of my head and scalp, and down the left side of my neck.
> That's it. I'm in and out in about 10-15 minutes. It takes about a
> week or so to see results, which is normal. Side effects- minimal-I've
> only had some very mild injection site tenderness-more if I touch the
> spots, and the sites are visible for a day or so-like the pores are big,
> no real big bumps or anything.
>
> I had botox with my last neurologist, as well as this guy. My last
> neurologist just learned how to do it when I saw her, and I noticed that
> as time went on, the injections became less effective. I also had a lot
> more injection site pain and tenderness. I'm not having the same issues
> with this doctor.
>
> Good luck, and let us know how you do.
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Please remove me from your email list.

Thank you,
Holly

On Oct 27, 2010 9:25 AM, "karen guilfoyle" <> wrote:

Thanks for the info, very helpful to know more what to expect. So glad it
has
helped you.
Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:48:16 -0400

> From:
> To:
> Subject: Re: DN Botox injections f...

> On 10/26/2010 7:58 PM, karen guilfoyle wrote:
> > That is great news. I had heard about it then my...
> 'message sent to'

> Dizzinews mailing list
>
> http://lists.samurai.com/mailman/listinfo/d...
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. Wow Pat, I have had 3 sinus surgeries and on countless rounds of antibiotics
and prednisone since my 20's(am now 56). I have taken so much prednisone that
I now have osteoporosis- it really helped break the migraine cycle most
recently.
Now, seeing your history it makes me wonder if I, too, was misdiagnosed all
these years. Headaches were just a normal part of life for me, sometimes so
bad I had to stay home and in bed but most of the time I just kept working,
etc. Of course took tons of OTC meds and some Rx which caused rebound
headaches which I just learned about this year.
My Mom always had "sinus" headaches.
I did not notice particular triggers like different lights, movies, motion,
or symptoms of nausea, feeling like my brain was "shorting out". But I didn't
know anything about migraines then either. I was really surprised to read that
stuffy nose is a symptom of migraine and that you don't always have an "aura"
or even a headache to be having an actual migraine. My Mom has now been
diagnosed with migraines too after having optical symptoms.

My headaches did become magnified 100x with the vestibular issues, especially
after the 2nd side "went down". Then I learned particular motions,
head-turning, looking up and down would bring on the worst headaches and then
really started noticing cause/effect of bright lights, motion sickness
and still learning new triggers. Now the migraines have taken on a whole new
life of their own and really causing me more problems than the dizziness and
balance problems- although such a treat to have both as you know. Being on the
computer being a big trigger for me. So I should get off the computer now but
thanks again, your information was really helpful, I will check out the
website.

Karen G/Omaha

> Date: Wed, 27 Oct 2010 08:34:05 -0400
> From:
> To:
> Subject: Re: DN Botox injections for migraines?
>
> On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> > Pat, Do you have classic migraines or vestibular associated migraine.
> > Judith
> >
> Judith,
>
> I'm sure you're looking for a short answer, but I feel the need to
> explain my answer. I have migraine disease, which I've had since
> childhood, but was never formally diagnosed until after the dizzies
> hit. The vestibular symptoms, at least in my case, resulted from 30+
> years of having migraines that were never properly diagnosed and
> treated. In my twenties and 30s, I'd get what I thought were sinus
> infections-lots of pressure, nasal congestion, some pain, light
> sensitivity, but not the textbook migraine symptoms. My doc would shine
> a light up my nose and tell me my sinuses didn't light up the way they
> should and he'd give me a prescription for an antibiotic. A few days
> later, my nose would open up, the pressure and the pain would be gone,
> and I thought the meds worked. Plus, it always seemed to happen the
> week before my period showed up.
>
> To be honest with you, I don't think the classification of vestibular
> associated migraine vs classic migraine matters, since, the goal, at
> least in my case, is to treat the migraine, then go on to VRT to get
> the balance mechanism as caught up as possible. I stay as active as
> possible, and although I still have bad days, I'm not in the same place
> I was 10 years ago when the "fun" first started. From what I've read,
> migraine is considered to be a genetic disease. I remember reading
> recently about a discovery of a gene related to migraine. I know I saw
> my mother having bad headaches she thought were sinus headaches-there
> were plenty of mornings when she'd be retching at the sink. Check out
> the site My Migraine Connection
>
> It has a lot of great information about migraine, treatments, etc. One
> of the site's people- Teri Robert, wrote a book Living Well with
> Migraine Disease and Headaches. I have a copy. If you would like to
> borrow it, I'd be happy to loan it to you. Just send me your address
> off-list.
>
>
> Pat
> _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. I really need to be removed from this email list. Let me know what else I
need to do to make that happen.

Thank you,
Holly



On Wed, Oct 27, 2010 at 9:45 AM, karen guilfoyle <>wrote:

> Wow Pat, I have had 3 sinus surgeries and on countless rounds of
> antibiotics
> and prednisone since my 20's(am now 56). I have taken so much prednisone
> that
> I now have osteoporosis- it really helped break the migraine cycle most
> recently.
> Now, seeing your history it makes me wonder if I, too, was misdiagnosed
> all
> these years. Headaches were just a normal part of life for me, sometimes so
> bad I had to stay home and in bed but most of the time I just kept working,
> etc. Of course took tons of OTC meds and some Rx which caused rebound
> headaches which I just learned about this year.
> My Mom always had "sinus" headaches.
> I did not notice particular triggers like different lights, movies,
> motion,
> or symptoms of nausea, feeling like my brain was "shorting out". But I
> didn't
> know anything about migraines then either. I was really surprised to read
> that
> stuffy nose is a symptom of migraine and that you don't always have an
> "aura"
> or even a headache to be having an actual migraine. My Mom has now been
> diagnosed with migraines too after having optical symptoms.
>
> My headaches did become magnified 100x with the vestibular issues,
> especially
> after the 2nd side "went down". Then I learned particular motions,
> head-turning, looking up and down would bring on the worst headaches and
> then
> really started noticing cause/effect of bright lights, motion sickness
> and still learning new triggers. Now the migraines have taken on a whole
> new
> life of their own and really causing me more problems than the dizziness
> and
> balance problems- although such a treat to have both as you know. Being on
> the
> computer being a big trigger for me. So I should get off the computer now
> but
> thanks again, your information was really helpful, I will check out the
> website.
>
> Karen G/Omaha
>
> > Date: Wed, 27 Oct 2010 08:34:05 -0400
> > From:
> > To:
> > Subject: Re: DN Botox injections for migraines?
> >
> > On 10/26/2010 8:33 PM, Judith Kypragora wrote:
> > > Pat, Do you have classic migraines or vestibular associated migraine.
> > > Judith
> > >
> > Judith,
> >
> > I'm sure you're looking for a short answer, but I feel the need to
> > explain my answer. I have migraine disease, which I've had since
> > childhood, but was never formally diagnosed until after the dizzies
> > hit. The vestibular symptoms, at least in my case, resulted from 30+
> > years of having migraines that were never properly diagnosed and
> > treated. In my twenties and 30s, I'd get what I thought were sinus
> > infections-lots of pressure, nasal congestion, some pain, light
> > sensitivity, but not the textbook migraine symptoms. My doc would shine
> > a light up my nose and tell me my sinuses didn't light up the way they
> > should and he'd give me a prescription for an antibiotic. A few days
> > later, my nose would open up, the pressure and the pain would be gone,
> > and I thought the meds worked. Plus, it always seemed to happen the
> > week before my period showed up.
> >
> > To be honest with you, I don't think the classification of vestibular
> > associated migraine vs classic migraine matters, since, the goal, at
> > least in my case, is to treat the migraine, then go on to VRT to get
> > the balance mechanism as caught up as possible. I stay as active as
> > possible, and although I still have bad days, I'm not in the same place
> > I was 10 years ago when the "fun" first started. From what I've read,
> > migraine is considered to be a genetic disease. I remember reading
> > recently about a discovery of a gene related to migraine. I know I saw
> > my mother having bad headaches she thought were sinus headaches-there
> > were plenty of mornings when she'd be retching at the sink. Check out
> > the site My Migraine Connection
> > <
> http://www.healthcentral.com/migraine/understanding-migraine.html?ic=4018>
> > It has a lot of great information about migraine, treatments, etc. One
> > of the site's people- Teri Robert, wrote a book Living Well with
> > Migraine Disease and Headaches. I have a copy. If you would like to
> > borrow it, I'd be happy to loan it to you. Just send me your address
> > off-list.
> >
> >
> > Pat
> > _______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe. On 10/27/2010 9:45 AM, karen guilfoyle wrote:
> I did not notice particular triggers like different lights, movies, motion,
> or symptoms of nausea, feeling like my brain was "shorting out". But I didn't
> know anything about migraines then either. I was really surprised to read that
> stuffy nose is a symptom of migraine and that you don't always have an "aura"
> or even a headache to be having an actual migraine.
I never had auras until after I got dizzy.
> My Mom has now been
> diagnosed with migraines too after having optical symptoms.
>
> My headaches did become magnified 100x with the vestibular issues, especially
> after the 2nd side "went down". Then I learned particular motions,
> head-turning, looking up and down would bring on the worst headaches and then
> really started noticing cause/effect of bright lights, motion sickness
> and still learning new triggers. Now the migraines have taken on a whole new
> life of their own and really causing me more problems than the dizziness and
> balance problems- although such a treat to have both as you know.
Sounds like my pattern as well. I didn't have the nearly daily
migraines until after the dizzies hit.


Pat
_______________________________________________
___________________________________________________

Posted on the Lists.samurai.com Ma mailing list. Go to http://lists.samurai.com/mailman/listinfo/dizzinews to subscribe.